My Son Has Began To Learn Numbers By Counting The Medicines He Needs To Stay Alive | Milaap
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My Son Has Began To Learn Numbers By Counting The Medicines He Needs To Stay Alive

I live with my 3-year-old son Pavan and my husband. When my son was born I believed that our worst days were behind us. I had a wonderful, caring baby. His happiness was our happiness. He is the centre of our world. But within two years of his birth, I realised that the future holds a lot more sorrow for us and a normal life may not be the one for us.



My 3-year-old baby is fighting a terrible condition for the past one year that no one I know has even heard of. I can't pronounce its name correctly, but my son Pavan and I know how cruel it is. My son has Agammaglobulinemia disorder meaning he has a very low level of protective immune system proteins called immunoglobins. The body makes every very little immunoglobin. As a result of which he develops, infections again and again.

I have lived in extreme poverty and have been through a lot of painful times. My son swept away all my sorrows with his smile. When he started speaking was probably the happiest I have ever been in my life. He weighed 3kgs at birth and he was perfectly well until he turned 2. Then, he had a severe fever, nausea and dysentery. He gets admitted, takes medicines and gets better. But then it is just a matter of time before he became sick again and needed to be admitted.



My biggest dream was to provide education for my son. I quit school after class 9 and have been working and saving from when I was 16. I started working in a factory for Rs 750 per month. I worked very hard all these years to live a decent life. I got married to a relative - it was a marriage decided by our parents long back. My husband is physically challenged, he is deaf. He is always with me, but he doesn't understand most things and he is very quiet.

When my son was born I saved everything for his education. My son just began to learn numbers. He is learning it by counting the number of medicines he is taking in. He asks me how many medicines later will he get better? He doesn't ask for a cake or chocolate because he knows that he will fall sick if he eats. 



I have spent all that I saved for my baby on his treatment. I have borrowed money on heavy interest for his treatment. Every time anything happens to him - I run outside like a madwoman asking every one for money till I can get necessary tests done. My husband is a welder in a shop and earns Rs 200 per day. Pavan's injections alone cost Rs 20,000 per month. As he grows the dosage of medicines will also increase. When he is 20, medicines would cost Rs 70,000 per month.

On hearing this, my family keeps telling me to give up treatment. They say we will end up living in streets if we continue. I lie awake in bed at night - holding him repeating over and over that I want him. If I stop treatment, he will not live - how is that a choice I can make? 



And he is such a sweet baby - quiet and loving. He loves taking bath with soap because he likes the smell. He keeps away his toys in their place. He even tidies the house! Everyone loves him. He doesn't like me crying, the moment I cry, he says not to worry and he'll take medicines regularly. How can I give up on him?

My husband is helpless, I am all alone struggling to save my son. Doctors have told me that a bone marrow transplant can cure him once and for all. He won't need injections. The transplant and the post-surgery costs come around 19 lakhs. What will I do to get such a huge amount when I don't have a single rupee left?

How you can help

 Everyone thinks I'm fighting a losing battle but I have not given up hope. I have no choice but to rely on strangers to help me save my son. Your support can make it possible for him to live a life. He deserves a life. I can never imagine losing him.

Please support me to save my son!

Supporting Document

The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.

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