“Think of the most friendly and loving person you know. For us it is Niyati. She is the most jovial, happy and warm child you will ever meet. There is not a single person who she does not get along with. But I fear that this disease will take that away from her. In the last 2 months, I have seen her cry more than I have seen in her entire childhood and I pray to God every single day to not take her smile away.” - Sushma Kureel, Mother of Niyati.
3-year-old Niyati has an aggressive form of cancer. Even after surgery and chemotherapy, her life is in danger. She now needs a bone marrow transplant to survive.
They thought it was a vitamin deficiency while it was a tumorAbout 3 months back, Niyati started suffering from high fever, the kind that did not go away with basic medicines. Simultaneously, she had serious pain in her joints. She was unable to run around, do everyday activities and sometimes even sit, without groaning in pain. That is when she was taken to a hospital in Thane. The parents also informed the doctor that they had not been noticing any growth in her body for a while, unlike other 3-year-olds.
“We wasted almost 20 days believing that she was just lacking vitamins and minerals but by then we could not accept that her extreme pain could be only due to that. Through a friend, we rushed her to SRCC hospital hoping to get the best care for our baby girl.” - Sushma
The large scar on her tiny body tells a painful storyAfter various tests, Niyati was diagnosed with Neuroblastoma, an aggressive form of cancer, where the tumor sits atop the kidney. Niyati recently had surgery to remove the tumor and has been getting regular sessions of chemotherapy. However, this is not enough. She needs a bone marrow transplant, without which, she will not be able to survive.
“I have already spent close to 4 lakhs in total, however now we need 10 Lakhs more for the transplant. I have exhausted most of my savings on Niyati’s surgeries and medicines, I do not know where we will be able to get the next 10 Lakhs required to save our angel.” - Vidyasagar, Niyati's father
Niyati's sister tries to cheer her up whenever she criesNiyati will be turning 4 this July, however, without the transplant, she may not live long enough to celebrate it. She has not been able to go back to pre-school ever since she started having fever and pain. Now she mostly stays indoors due to her disease, spending time with her beloved sister, Ananya (8) watching cartoons like Little Singham and playing with blocks.
“Ananya feels terrible looking at her little sister suffer and tries to cheer her up as much as she can, she really loves her baby sister. Unfortunately we do not have answers to give her when she asks us when Niyati will be all better. I wish we had an answer.” - Vidyasagar
How can you helpNiyati already went through a surgery and numerous chemotherapy sessions. But all this pain will go vain without a transplant. Vidyasagar works as a finance executive at Flipkart and makes Rs. 19,000 per month. He is the sole breadwinner of the family. Sushma and he are desperately running around to make ends meet and save up money for their daughter's treatment which will cost them over Rs. 10 Lakhs.
Niyati may be able to celebrate her 4th birthday with your help.
The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.
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