Birth of a child is an occasion of utmost celebration for any couple. But such was not the case with Sahdiya and Mafas. Hours after their baby was born, the doctors noticed a lump of mass on his backside. The family immediately discerned that something was wrong, as even the most naïve of us know that having an unexplained lump is never a good sign.
“The doctors carried out scans. Even though we had an inkling something was off, the diagnosis was far beyond what we could have imagined”, recalled the baby’s mother, Sahdiya.
A pain that didn't subside
Hailing from Sri Lanka, 4-year-old baby Younus was diagnosed with Yolk Sac Tumour right after he was born. It a rare, malignant tumor of cells that line the yolk sac of the embryo and affects the testes or ovaries.
“After the diagnosis, he was kept in the hospital for 15 days. The doctors then decided to operate. My baby seemed fine after that but 6 months later, we were back at the hospital. They said that the first operation wasn’t successful and Younus needs to undergo surgery again. I haven’t been as helpless as I was at that moment. My baby was going to be in so much pain and I could do nothing about it. The thought broke me. Yet, I hoped that this was the last time when my baby suffered”, said Sahdiya.
He grew with his illness
However, luck was having none of Sahdiya’s prayer. Two years later, Younus began to develop a lump around his stomach region. Scans and test followed and tumour was confirmed. The 3-year old baby was again made to undergo surgery. In addition, the doctors also scheduled him for multiple cycles of radiotherapy.
“Despite everything, his tumour kept coming. That is when one of my relatives who live in India advised me to come here for further treatment. I would give my life to save my child, so coming India was just a small sacrifice in comparison”, said the baby’s father, Mafas.
'We travelled from Sri Lanka to India for our baby'Back in Sri Lanka where he lives with his wife and son, Mafas owns a shop. His monthly income was Rs. 10,000, until he travelled to India three months back.
“At present, we have absolutely no source of income. Over the past three months, we have spent close to 8 lakhs on my baby’s treatment. The medical dues keep mounting up. We have no resource here. We even have so much in loans to pay off now. I don’t know how we will ever move forward”, said Mafas.
4-year-old Younus is currently undergoing his chemotherapy at NH Hospital in Bangalore. He has already undergone tumour removal surgery here. To ensure that the relapse doesn’t occur over and over again, the doctors have recommended bone marrow transplant for Younus, followed by radiotherapy. The estimated cost of entire treatment is 15 lakhs.
“My baby is only 4-years old and he has already undergone surgery 5 times. Imagine being a parent and seeing your child punctured with needles and filled with scars received after surgeries. My husband and I have been wheeling our son to this fate for past 4 years now. Can you imagine how painful life has been for us so far? My child is very active. On best days, we don’t even feel like he ever had any illness. But at the end of the day, we know the truth. No matter how hard we try to pretend we are happy for our child’s sake, we can’t help but cry over his future”, said Sahdiya.
The family has been struggling right since the baby was born. They have already exhausted whatever little resource they had for their son’s treatment. Now they are worried about how will they be able to arrange for such a big amount? That too in a time when they are away from home.
How can you help?
"He misses his home. His friends. He wants to go back to school as soon as possible. How do I possibly explain to him how sick he is? In an age when he should be worried about homework and playing with his friends, he is out here on an hospital bed, waiting for someone to save his life and end the misery. "
Younus parents have been praying every day hoping a miracle would save his son. He is unable to afford this cost. With the family in Bangalore from past three months, they do not have the means to earn whatever little they had. They need all the help they can get to save this little boy.
Your contribution would help 4-year-old Younus get the life-saving bone marrow transplant.
Supporting documentsThe specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.
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