“The past two months have been hell. Our only child was diagnosed with a fatal disease, we’re watching her suffer and bleed in front of our eyes…we left our home behind, my husband and I lost our teaching jobs..all while trying to save our Pari. The life we knew is now gone, we can’t lose our Pari too. Everything that we do, is to see her healthy again, to see her smile again..” – Divya, mother
Pari is only 5 and her life is at risk. There is a cure for this blood disease, a bone marrow transplant- but it’s beyond Kundan and Divya’s means. After losing their jobs, exhausting their savings and borrowing from everyone, they have nothing left to even buy her medicines.
Her condition has deteriorated – she has started bleeding from her gumsPari is talkative. So talkative and active that she wouldn’t stand still for more than a few seconds. Always on the go, always smiling. But her life changed in May when she started getting fevers frequently. The red spots on her legs only increased their worry. Divya still remembers the date – May 29th. That was the day Pari was diagnosed with Aplastic Anemia, a condition in which the body stops producing new blood cells.
“We brought her from Bihar to Kolkata for her treatment, they told us it was the best chance she had. We’ve been here for over a month…and she still has a fever. She gets blood every few days, the medicines aren’t working…nothing is working, nothing is making her feel better. Only a bone marrow transplant will save her.”
In the past two weeks, her condition has gotten worse. She has even started bleeding from her gums – a dangerous sign.
One day, they asked us not to come back to workKundan and Divya now live in the hospital. Where else would they go? They have spent over 6 lakhs in just 2 months. That’s all their savings and all the money they could borrow from relatives. Kundan used to teach Math and Divya used to teach the nursery class in the same school. All they hoped was for Pari to have a happy childhood.
“She’s been in and out of the hospital so many times since May, we had to keep taking leaves from work. One day, they asked us not to come back.”
Ever since then, these parents have had no income. They have no way to afford her life-saving treatment.
Pari doesn’t have half the energy she had a few months ago. She doesn’t smile or talk much and isn’t easily distracted by toys anymore. Pari is only getting sicker and a bone marrow transplant at the earliest is her only chance.
The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organiser or the medical team.
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