“We can’t think of a life without Tejaswini. She used to be so active and cheerful, but this disease has changed her. She rarely smiles anymore. We will do anything to see that smile back on her face,” says Lalitha, Tejaswini's mother.
Tejaswini has been sick for a year now. However, her condition has drastically deteriorated in the past 3 months because of the rare, severe blood disorder that she’s been living with. Tejawasini’s parents, Lalitha and Nagaraju, have been doing all they can to get her treatment. The only way she can be saved from succumbing to this disease is an immediate bone marrow transplant.
There’s no end to Tejaswini’s suffering as she gets a high fever every 15 daysTejaswini has been diagnosed with Fanconi’s Anemia, a rare disorder that affects the bone marrow which in turn decreases the production of blood cells. It all started when Tejaswini got a high fever one year ago and her parents rushed her to the doctor when it didn’t subside.
“We thought it was a regular fever, but it didn’t get better at all. We took her to the doctor and got a few tests done. They then told us that it was dengue and started treatment for the same. We thought there was hope when her condition began to improve, but it was only momentary. My child is only getting sicker as the days are going by.”
Tejaswini has recurrent fevers every 15 days now. She complains of stomach ache and can barely eat anymore. This has prevented her from going to school regularly, but Tejaswini still looks forward to it as it distracts her from the pain, even for a little while. Unfortunately, Tejaswini can’t go to school anymore. Her disease has made her so weak that she can’t even write her homework. Her parents are worried sick that if she’s not treated soon, they might lose her.
Tejaswini in a rare happy moment
Her family is willing to do anything to save her, but are being held back by their financial conditionTejaswini hasn’t been alone in her fight. She has two older sisters, Malashree and Bindu, who adore her. They accompany her to the hospital whenever they can and have always been there for her. Lalitha finds strength in their love, but it saddens her to think that this might all be taken away from them soon.
“We haven’t told them how serious the condition is, but they’re willing to do anything to save her. I’m also trying to stay strong for her. Sometimes I can’t help but cry when I’m alone. My child is only 6-years-old and is suffering so much, it kills me inside to watch her go through this. Once, she saw me cry and even tried to cheer me up. I don’t know what I will do if I lose her."
Tejaswini and her sisters
Nagaraju is a farmer with half an acre of land in their hometown in Tumkur, Karnataka. He also works on other’s farms to help sustain the family and pay for his daughter’s education. With irregular work and a meagre income, its impossible for Nagaraju to arrange for the 20 lakhs required for Tejaswini’s bone marrow transplant. They have spent 2 lakhs for her treatment so far after much difficulty and now are in no condition to get more funds.
“Our relatives keep asking us why we’re struggling so much to arrange for money for her tests, they think there’s no point to all the hospital visits. But we will do what it takes to see our Tejaswini healthy again."
How You Can HelpTejaswini needs an immediate bone marrow transplant. She has been living with a severe blood disorder for a year now and can’t go on any longer without a transplant. Her father is a farmer who has borrowed heavily to pay for her treatment so far. With your help, she can get the transplant and start to live a healthy life.
Your support can save Tejaswini’s life and give her a chance at a healthy future.
The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.
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