“Juveria often wakes up crying in the middle of the night and Rezwana and I get so scared. For the last one month we have been living in the constant fear that something dangerous will happen to my little baby if we don’t get her treated. She needs a liver transplant at the earliest but how will I afford it without some help?” - Yakub Pasha, father of 4-month-old Juveria.
A rare disease has crippled the life of this babyJuveria has been diagnosed with biliary atresia. It is a rare disease of the bile ducts where they become inflamed and blocked soon after birth. This causes bile (a digestive liquid) to remain in the liver, where it starts destroying the liver cells and eventually cause scarring of the liver. The doctors have told Yakub and Rezwana that now the only hope for their baby girl is a liver transplant.
“Her eyes and her entire body had started turning yellow. She wasn’t able to feed at all - whatever she drank, she vomited out. We felt so helpless as she cried out incessantly in pain. The medicines from the local doctors wasn’t enough and so we had to take her to Hyderabad.”
All this young couple had hoped for was their daughter to be healthy and happyJuveria is very weak and tired and weighs only about 4 kgs. The disease is making her frailer with every passing day - the sooner she gets the transplant, greater are the chances for her to recover. It’s been just a year that Yakub and Rezwana have been married and all they had hoped for is a little baby playing in their arms. The young parents had no idea that their daughter would be braving so much, so soon. Yakub is trying hard to juggle his work and taking care of Juveria - but it is becoming difficult for him as well.
“I have to take leaves often because Juveria doesn’t get keep well. Thankfully, my office has been very considerate all this while, but I don’t know for how long I can manage like this. I have already spent more than a lakh on her treatment and now this transplant would cost Rs 18 lakhs. I have no one to turn to for help.”
“I am ready to be the donor but without help, it is next to impossible for me”4-month-old Juveria is suffering from a rare medical condition that can only be fixed with the help of a liver transplant. But her parents are unable to afford it. Yakub is willing to be the donor but money is becoming a major roadblock. However, a small contribution from your side will make a big difference in Juveria’s life.
Your support can save this little baby's life
The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.