13-Year-Old With A Funnel Shaped Chest Has A Heart Disease That Can Kill Him At Any Moment Without Surgery | Milaap
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13-Year-Old With A Funnel Shaped Chest Has A Heart Disease That Can Kill Him At Any Moment Without Surgery

"He keeps saying that he's fine, but he's struggling to hold back his tears. I have seen him crying in silence. He's scared but he tries to hide it from us. 3 years ago,  we found out that the holes in his heart were growing. I was asked to pay Rs3,500 for the tests but I didn't have that much money, so we couldn't get the tests done. That's the biggest mistake I've made. Now he can't even walk or talk for a long time. He breathes so heavily. I feel he might leave us at any moment." - Manimaran, father.

Deepak was born with a complex heart problem and a funnel chest

Within a few hours of Deepak's birth, a loud murmur was heard from his heart. He was struggling to breathe. He has a complex heart problem called Tetralogy of Fallot (ToF) which is a combination of four related heart defects that occur together. The four defects are holes in the heart, blockage of blood flow from the right ventricle to the artery, right ventricle pumping at high pressure and enlarged aortic valve.

Adding to this, he has a deformity in the thoracic wall, a sunken appearance of the chest. It causes him severe back pain and it affects his cardiac and respiratory functions. His parents were shocked to see him in such a condition but they were told that over the years, it would heal by itself.

"I didn't understand anything the doctor was saying but they said as he grows up, his chest will become normal and the holes in his heart will also will disappear, but it didn't. Now doctors say he requires a surgery and he will not make it without it. I desperately wish that it's not too late." - Senthamarai, mother.

Deepak can't walk or talk for long without getting tired

His heart murmur is getting louder every day. Deepak Raj requires an urgent surgery to correct his heart defects and chest deformity. He can't walk like other kids and gets tired even if he talks and laughs. He is slipping into depression. He fears death and hardly talks to anyone now.

"I'm not educated, it is my ignorance that made his condition so severe. I feel very guilty to even face him. I thought he will be angry with me for not giving him proper treatment but he is so kind. He consoles me. Last month, when we had a camp in the village, doctors were shocked to see his condition and warned us not to delay any further. They said only a surgery can save his life."

His parents are daily wage workers and are struggling to even afford their next meal

Manimaran works as a daily wager in Kerala. His family lives in a village in Salem district. He visits his family once in a month and earns around Rs 300 per day. Deepak's mother, Senthamarai works as a daily wager and earns Rs 100- 150 per day. They are struggling to have even 3 square meals now. They have 3 daughters as well to take care of. The eldest daughter Divayadarshini (17), scored well in her board exams but now is forced to look out for a job to support the family.

How you can help

Deepak Raj needs an urgent heart surgery to survive. He has suffered a lot in silence and now is on the verge of losing his life. Surgery his only chance to survive. The only thing standing in his way is their poverty. His parents can never imagine earning so much of money in such a short period. Deepak needs Rs 4 lakhs for the surgery and it's highly impossible for them to afford it.

Your small contribution can help this family save their son

Supporting Document

 The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.

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