I Have Already Lost A Son To This Disease, Now I Risk Losing My Daughter Too

“We did not want to name her until we were sure she would survive. With my son, we were deciding names before birth, and ended up losing him when he was just 4 months old. Taking all these precautions against luck didn’t matter. We may lose our daughter anyway.” – Pavithra

Pavithra is no stranger to the death of a child. This time, she knows what the problem is. This time, she can save her baby girl. This time, she needs your help.

'It was too late to save our first child, it may not be late to save our daughter'

Pavithra, Suresh and their 5-year-old son Abhivardhan were excited to welcome a new baby into the family. A week after birth, Pavithra thought the baby had a diaper rash. Within a day, it turned into a blister. It was impossible to lay the baby girl down without making her scream in pain.

“It spread so fast. There was nothing I could do. Even prescribed medicines and ointment did not work. I panicked, visited every doctor until I was referred to a hospital in Chennai. Our daughter has an immunodeficiency. Her immune system is very weak and she keeps getting these terrible infections. It turns out that our son had the same condition and we lot him to it. Our daughter does not have much time. She needs a bone marrow transplant.” - Suresh

'You can hear the pain in her cries'

Abhivardhan was born a year after Pavithra lost her first child. He is perfectly healthy, so the family did not have reason to believe this is genetic. The baby’s infection has now spread to her backbone, and it could affect her whole body if she does not get a bone marrow transplant immediately.

“My daughter never stops crying. I have tried every possible way to calm her but nothing works.” - Pavithra, mother.

The infections can take her life if they don't act fast

Suresh is a suitable donor for the transplant. He applied for CM funds as he could never afford the treatment on Rs. 300/day income. The transplant is estimated to cost 25 lakhs. Suresh has already spent 2 lakhs so far just for the medical tests and treatment that his daughter is undergoing. He had to mortgage his wife’s jewellery and took loans. Now, he is left with nothing.

“We are home now. We have Rs. 10 Lakhs and we need Rs. 15 Lakhs more to save her. Even though we are halfway there we feel like we will never be able to arrange for so much money. I have to ask strangers for help.” - Suresh

Pavithra’s baby is in horrible pain. She cannot lie down or even wear clothes because of the blisters. She constantly has a fever. Heavy antibiotics cannot keep the infections at bay. If there is any more delay, an infection could kill her.

Your contribution can save this baby girl’s life.

Supporting document

The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.

Click here to save Pavithra's baby