This is an extremely rare case and unfortunately we cannot treat the child in India - said one of the doctors.Shaurya was first diagnosed with this disease at the age of 2 year 4 months at Christian Medical College, Vellore, India in March'2014.
He has a larger head than usual and sometimes we feel bad for him
"We helplessly see him awake all night he just cannot sleep in peace due to all the complications" - Says Saurabh - Shaurya's Father
Save Little Shaurya, suffering from a rarest disease "Hunter Syndrome"
This fundraiser is for 5 year old Shaurya suffering from a life-threatening rare disease.
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