"For the last 10 years, we've taken her to hospital every month without fail for blood transfusions which helped her stay alive. We kept telling her that God would help her and she can be free from this pain one day. But now, she needs transfusions almost everyday to be alive and only a transplant can save her life. There is always a look on her face, like she is inching closer to death. She asks me, "Amma, is God angry with me?" She fears death and I can't bear this." - Ribta, Mother of 11-year-old Sharonroja.
Painful blood transfusions have become a part of Sharon's life Sharon was just 6-months-old when she was diagnosed with a deadly blood disease. She has Thalassemia, a genetic disease that affects the production of hemoglobin and reduces its capacity to carry oxygen. It cause severe anemia and will turn fatal too without treatment. She has been living only on borrowed blood for the past ten years. Each blood transfusion causes her a lot of pain. The most happiest phase of life, childhood, has turned out to be the darkest days of her life.
" We are not educated, we didn't understand her condition. But we know we can't miss the transfusion. Once, we delayed it for a week because we didn't have money, she became so pale and she was almost lying lifeless with no strength to even get up from the bed. Since then we made sure she gets transfusion every month. It is a painful process. But sometimes we think she has become numb to it because she has not complained about anything. Hope was our only strength now we are losing it." - Mallika Arjun, Father.
Sharon's blood disease can turn fatal any moment without an urgent transplantSharon used to attend her classes amidst this pain and trauma. Talking to her friends and her two little siblings were the only things that gave her happiness. She cannot play for a long time because she becomes too tired and weak soon. She is now admitted to the hospital and this poor little girl is all in tears day and night.
" As if this pain was not enough for us, our younger son Sam (6) was also diagnosed with this cruel disease. Sharon has seen me begging to people for her treatment. Doctors have told only an urgent transplant can save her. She now asks us to spend money on her brother's treatment. I'm scared of the thoughts running in her mind. She thinks God is angry with her and we cannot afford her treatment, this little girl has lost all her hopes she had." - Mallika Arjun.
Sharon before the diagnosis
Father, a machine operator is running out of time to save his daughterSharon's father Mallika Arjun works as a machine operator in a private company. He earns Rs 10,000 per month. Blood transfusions alone costs round Rs 15,000-20,000 per month. For the past 11 years, he has been borrowing from everyone he knew, sometimes worked till late hours for extra income. He has always tried all the ways possible to provide treatment for Sharon, but now he needs Rs 15 lakhs for the treatment and the transplant which is just beyond his means.
"Everyday she is just going a step closer to death. I can see her condition deteriorating. Her eyes are filled with tears and fear. Her younger sister Swapna is a matching donor. But I don't have anything left with me. I'm not able to go to my work regularly. Only with this salary, I mange to feed my family. I cannot imagine losing my daughter. All she has experienced is pain. I'm longing to see her live a normal life but I'm failing her." - Mallika Arjun.
How you can help11-year-old Sharon suffers from Thalassemia, a rare blood disorder. She has been suffering since she was 6-months-old. She was hopeful that would live a normal life one day, but now she fears death. Her parents have spent everything they had and now they are left with nothing. Sharon's younger brother is also diagnosed with the same and the parents are devastated beyond words. She needs an urgent bone marrow transplant to survive.
Your kind contribution can save this 11-year-old to fight this terrible disease and live a normal life
The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.