“She was born fighting for her life, and the struggle continues every day with something or the other threatening her. We thought it was all behind us, that she would grow up healthy, but she ends up spending most of the time in hospital when she should be out playing with her friends and having a happy childhood.”
“She was a premature baby. She had to be in the NICU for 3 months because she was underweight, could not feed directly and was on a lot of antibiotics because of sepsis. It was heart-wrenching for us to not even be able to hold her in our arms.”
“I always thought she was weak because she was a premature baby. She would have fever, cold or cough. She would look pale and tired most of the time. She was never active like other children. It was only when she was 2 years old that we went to a specialist to talk about her fluctuating haemoglobin levels. She was constantly anemic and we wanted to know why.”
"After Nikhisha’s 1st birthday, my husband left us. He saw that she kept falling sick and wanted a family where he could have a healthy child. My brother is the sole-breadwinner now. He supports us and his family on Rs. 22,000. It is getting difficult to meet ends now. My father is also sick and his treatment is quite expensive.”
Help Nikhisha Survive This Misunderstood Blood Disorder
She has been fighting for her life without her father’s support. You can help her stay alive.
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