When I brought my son to the hospital two weeks ago, I didn’t know he would end up like this. He consoled me by saying, “amma, don’t worry. I’ll be back from this surgery and we can go home soon”. But now, he is lying in front of me and he can't even recognize his own mother and father. He is not even speaking a word." - Sudha, mother
6-year-old Guru Prasath was born with Arnold Chiari Malformation, a condition in which his brain tissue extends into the spinal canal. The problem was diagnosed only a year back when he had a seizure in his classroom. During the diagnosis, they found out that he also has cervical syrinx with hydrocephalus, a condition where excess fluids build-up in the brain’s cavity and spine.
He stopped playing in school as he was afraid of being pushed down by kids
He is a quiet and sweet boy who loved going to school, studying and playing with his friends. After he got seizures, he started having difficulty walking and became slow. A few weeks back I noticed that his hands were twitching and he was struggling to hold his pencil. We took him to the doctor immediately and they told my child needs an urgent surgery - Sudha
He underwent two operations in three days, one to remove the cerebral fluid and the other to correct the extended brain tissue in the spine. Due to the surgery in his brain, he is exhibiting symptoms like not remembering things and problems with the speech which will go away if he recovers after another surgery.
He will never remember us without this urgent surgery
I’m uneducated and it’s difficult to understand what the doctors are saying. I know that my child has some problem in his brain and he can talk and remember only if gets another surgery in three days. Our younger son at home is not eating or talking to any of us until he sees his big brother. He wants to talk to him over the phone but how will I tell him that his big brother cannot talk and does not even remember his little sibling - Rajasekar, father
He left his job, sold his van - but nothing is enoughGuru has to undergo one more surgery where a medical device will be penetrated deep inside the brain’s cavity to remove the excess fluid that has accumulated. The whole procedure will cost around Rs 7 lakhs and his parents cannot afford that much money. Rajasekar is a van driver and he has left his job to take care of his son in the hospital.
"I have already borrowed money and sold the van that I depend upon for a living. Nothing is more important than bringing back my son’s life. Now I have nothing left to sell and no doors to knock on for money." - Rajasekar
You can help this struggling family who wants to see their son become normal again. Without your kind contribution, this kid might not talk or remember his parents anymore.
The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.
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