For the past 2 years, Kabir has been confined indoors as he is suffering from a deadly disease called IPEX syndrome, due to which the body’s immune system attacks its own tissues and organs. He is not allowed to go outside even for 5 minutes as even a small infection can turn fatal for him. He makes most of his time by indulging in one activity or the other – he draws, makes TikTok videos and even watches his favorite cartoons all day.
His parents bought him a Spiderman costume recently and now he’s always wearing it. He thinks he is Spiderman and can defeat his disease one day.
The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.
His parents bought him a Spiderman costume recently and now he’s always wearing it. He thinks he is Spiderman and can defeat his disease one day.
“He tries to learn the dialogues by heart and recreates scenes from the cartoons. He tells us – ‘I am strong and I will be healthy one day. I will also go to school one day and be a superhero when I grow up and save the world’. We love his spirit, it gives us confidence. However, without a bone marrow transplant, he won’t survive.”-Ganesh
In the last 2 years, this little boy has been admitted multiple times in the hospital
Kabir’s ordeal started when he had just turned 2 years old. He started falling sick with high fever and low hemoglobin levels, and was admitted repeatedly – sometimes more than 5 times in a single month itself. No doctor could ascertain what was wrong with him until 8 months back. Ever since then, his parents Ganesh and Mamta have been adopting measures to make sure that Kabir lives in a clean, sterile environment."He can only drink clean, boiled water kept in a copper vessel. Doctors recommended buying an RO, but we cannot afford it. We close the windows of the house most of the times so that dust does not creep in. If we have to take him to the hospital, we cover him fully – from head to toe. But despite all this, he falls sick. He becomes very weak and cannot even get up from his bed on those days,”-Mamta
A bone marrow transplant can save Kabir, but his father cannot afford it
The only cure for Kabir’s condition is a bone marrow transplant that costs lakhs of rupees. But his father Ganesh is an office boy in Andheri who earns only Rs 8,000 a month. Arranging such a big amount right in time for the transplant is completely beyond his reach. He was able to afford Kabir’s treatment till now only with the help of kind relatives who lent him money. But he has not been able to repay any of it, and is struggling to meet current medical expenses. He needs your help to save his son.“In the past 2 years, I have spent more than Rs 5 lakh on my son’s treatment. My family had to compromise on a lot to make sure that Kabir stays alive. But now, we are left with nothing and need your kind help urgently,”-GaneshEven your small contribution can make a difference to Kabir’s life. If he gets the transplant, he can lead a normal life like other children and go to school
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The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.
