“She hasn’t grown in years now because of her disease. She’s 16, but she’s 4 feet tall and only 28 kg. She’s smaller than all her classmates, but Husena hasn’t let her unusual disease break her spirit. She insists on going to school even on days she can hardly carry her school bag.” – Chand Pasha, father
All her life, Husena has been fighting the various effects of her disease. Chand Pasha drops and picks her up from school every day. They can’t send her unaccompanied. She is extremely weak and needs regular checkups every month. She has been getting injections every day for the past 3 years, but after years of getting her treated till now, Chand Pasha has nothing left to continue it.
She is finally showing signs of improvement – but they might be forced to stop her treatmentHusena has Turner syndrome, a condition that affects only females. It is a result of one X chromosome missing and can cause physical, mental and developmental problems including short height, delayed puberty, failure of the ovaries to develop and heart defects.
“Until last week, she hadn’t got her periods. But this is a good sign now. It means that the treatment is working and her condition is improving. She has been going to the hospital every evening after school to get the hormone medicines for 3 years now.” – Naseema, mother
However, Husena can only fight it if she gets the hormone injections for the next 1.5 years. Chand and Naseema worry that just when she has started showing signs of improvement, they might be forced to stop her treatment.
Her mother is handicapped, and her father is struggling to save her on his meagre incomeChand Pasha has to be the one to take Husena to school, go to work and then take her to the hospital. Naseema is physically disabled due to polio and can barely manage to walk, she can’t work or take Husena to the hospital on her own. Chand is a farmer in Raichur and on his 4 acres of land, he grows corn. However, due to no rainfall, his crops are not thriving.
“I haven’t made much last year. I sold the only property I had invested in to continue her treatment until now. We spend almost Rs. 30,000 per month on her injections and checkups, but I hardly made that much the entire year. I’ve spent 9 lakhs on her treatment till now, I can’t afford anymore.” - Chand Pasha
Chand needs 5 lakhs more to continue his daughter’s treatment. Else, all the progress she has made so far will go in vain. He has single-handedly been taking care of his family of 4 and needs your help now.
Husena’s disease can cause many complications with her kidney, heart, vision, blood pressure and so much more. The injections are her only hope to recover.
The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.
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