"My son keeps scratching himself all day and night until he bleeds. He has not been eating or sleeping. He cries and screams loud because he is unable to bear the pain!"
2 years old, Nihaal has been in pain for most of his life. Recently we found out that he was born with a liver disorder that has been slowly killing him. For over a year, even though we went to doctor from this village and managed on medicines, we never knew the magnanimity of this disease nor did my son get any relief. He is racing against time to survive liver failure.
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"For a year we gave him these medicines. For a year, our baby boy kept having vomiting, severe itching, white stool. He would not sleep at all. All night when he cried we would stay awake to pacify him. And, all that time, we thought it was jaundice."Nihaal's skin got so sensitive that it tears easily, and he is irritated all the time because he feels like itching all over. It got so unbearable for him that he began to scream continuously. We told the doctor he HAD to do something! It had to be something more! So, he referred us to Dr. Prashanth at Rainbow in Hyderabad.
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Nothing helped. We are not exaggerating when we say Nihaal did not sleep. He began urinating blood. All this stress, over the 2 years has given me BP, and my wife has stopped eating causing ulcer. We pleaded with the doctor to help our son. Though he was given sleeping pills, Nihaal now sleeps for just 2 hours. He can digest only breast milk and milk rice.
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I work at a seeds company packing seeds. I get Rs. 15,000/month which goes towards the rent, household expenses, Nancy's and my younger sibling's education. I had to quit education as my father died when we were young and I had to step up for my family. I managed to get one of my brothers to study and he is working as a teacher in a town nearby. He is taking care of Nancy. I just hope this nightmare ends for us. I just wish we can save Nihaal.
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2 years of trauma. No child should go through something like this and no parent should be witnessing it. Please help us save our son!
Supporting Documents
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Click here to save little Nihaal's Life.