At 2 years of age. Our children were perfect. We didn't even imagine they would be affected by a disease so rare and unexpected that people would take so long to even diagnose it. We lost our daughter to it. My son's symptoms have just begun to show. There's time to save his life. We are just short of the means.It started with her losing balance whenever she walked. Slowly, she began to lose her motor functions. Then, she began to go deaf. The disease affected her vision also. As we watched our daughter wither away the voice we so loved disappeared. She couldn’t talk, couldn’t say our names, couldn’t remember us, and after a while couldn’t even recognize us. The seizures took over her life until she stopped breathing.
One month ago, we got the worst news of our lives. BOTH our children tested positive for the disease.
Her struggle did not go in vain. At least Rithwik does not have to go through the pain for diagnosis. There is time to save him. We have a donor. We have a treatment plan. We just do not have the funds to go through this treatment.
They used to play together whenever she mustered some energy. Towards the end, even when she was bedridden. Even if she couldn't recognize us, there was some magic going on between these children. They comforted each other. We'd like to think that our daughter is up there, trying to save her brother.
Supporting DocumentsThe specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.
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