“When the doctors told me that Ali had Thalassemia, I was so scared. I had never even heard of such a disease. But I knew I would fight it. I was not ready to lose my son.”
And thus began Md. Mabood Alam’s 4-year battle, which is still ongoing, to save his son’s life. He was just 6 months old when Ali was diagnosed with the disease. He had been having a recurring fever, which had prompted Mabood to take him to the doctor and get some tests done. The results showed that he had Thalassemia, and the doctor explained to Mabood that it was a rare blood disorder in which one’s blood is unable to transport oxygen adequately around the body.
There are only two ways to fight this disease: one a treatment and one a cure. One could either regularly get blood transfusions, a temporary solution, or get a bone marrow transplant, which would fix the problem at the root.
“I’m just a daily wager. When the doctor told me how much the transplant would cost, I knew I would never be able to afford it. So I started getting blood transfusions for my boy.”
But Mabood can only barely support even that. To keep being able to afford his son’s monthly blood transfusions, Mabood has had to borrow money on more than one occasion. He even tried to sell off his share of a plot of land belonging to his family back in his village but his family cut him off. It wouldn’t have fetched him much but it would’ve been helpful.
“They think I’m wasting my time and money. They don’t understand why I want to bother trying to save my son’s life. They told me that if he’s dying, I should just let him die, and then try having another son, one who was healthy and wouldn’t be a burden on the family. I begged, and begged, but my family shut me out. They won’t give me even a single rupee. I can't bear to see him like this. I can tell he's so scared, he cries so much and that... it just breaks my heart."Now the doctor is recommending that Ali get the Bone Marrow Transplant surgery done as soon as possible. Blood transfusions are not a viable long-term solution, because the longer one keeps getting blood transfusions, the more damaged the liver and kidneys get.
“I feel so lost, and alone. I don’t know whom to turn to. I’ve not told my wife how bad the situation is, because I’m scared she’ll have a breakdown, she’s already so stressed. I’m trying to stay strong for my family, but I don’t have anyone to be strong for me. I just don’t want to lose my son. I just… I wouldn’t be able to take it. He’s the sweetest boy you could ever meet. I pray every day for all the parents in the world who are going through something similar.”
If he is able to get through these tough times, Mabood wants to start fighting for other kids (and their parents) in his town who have been diagnosed with life-threatening conditions. He wants to start a support group, and let them know that they are not alone, and help them however he can.
For now, it is Mabood who needs your support. Without help, he will not be able to save little Ali. Donate now, and let him know he’s not alone.
The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organiser or the medical team.
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