“My little baby Uzma had a high fever for 2 days. Her blood test shocked the doctors too. Her hemoglobin was just 3.8 . Within few days, her stomach got abnormally swollen and her limbs became very thin. Every day we could see her getting more sick. By the time the disease was diagnosed, her liver was already damaged. My baby is dying a slow death and I can't bear to see it." - Zakaria, Uzma’s father.
Little Uzma’s liver is damaged beyond help and she struggles to even eatZakaria and Sumaiya were in cloud nine when Uzma was born. She had just learnt to speak. She was a healthy baby until January. Little Uzma was diagnosed with a liver infection and a decompensated liver. Her body produces a high level of an enzyme called tyrosine which has affected her liver badly. Although the disease was living in her body since her birth, it took a long a time to show.
“It’s been months that my little baby hasn’t slept well. She cries uncontrollably. Her eyes are swollen. Her belly gets swelled up abnormally and she can’t even walk. Her stomach gets filled with water and she can't even feed. She has drastically lost weight. It’s painful to even look at her now. I can’t imagine the pain she must be going through. I am scared that if we can’t manage to treat her soon, we will lose her.”
Uzma’s damaged liver doesn’t let her do things that she once loved so muchLittle Uzma loved playing around. It was very difficult for Sumaiya to keep her daughter in one place. If she turned to do some of her chores, Uzma would run away in no time. But now her failing liver has left her drowsy and exhausted. Now her parents can’t see her play any longer
“The time that went by for diagnosing her disease, has only worsened her liver condition. The medicines have kept her pain under control. But she will need a liver transplant soon. If it is not done, she can have an acute liver failure and even cancer. Doctors have also told us that without the transplant her mental and physical growth will be badly affected. Even a slight infection can kill her.”
Zakaria is neck-deep in debt and can’t find a way out to save his babyZakaria has to take his baby girl to the hospital every 15 days. He has a small xerox shop in Surat and has no one to help him at his work. Sometimes he can’t open his shop for days and he has incurred a huge loss. He manages to earn Rs 10,000 a month. Besides, his baby’s treatment, Zakaria has to take care of his old parents. Uzma’s condition demands constant medical care which costs him a lot.
“Uzma’s condition is deteriorating every day. My wife, Sumaiya has slipped into depression and she hardly speaks. It’s not just my baby’s liver that is failing, my family is falling apart too. I don’t think I will ever be able to overcome this grief.”
How you can helpLittle Uzma has a dreadful liver disease. She needs an urgent liver transplant. Her father Zakaria is a matching donor. He has already spent Rs 4 lakhs for the treatment. He barely had any savings and had to borrow from his relatives. The cost of the transplant is Rs 15 lakhs and Zakaria has nothing left to save her. Her parents can't watch her die. Time is running out for Uzma. With our support, this 1-year-old can be saved.
Your support can help this baby live.
The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.