WAS is an extremely rare and fatal disease, which if untreated, causes children to succumb to severe infections. Thanvik has already shown signs of severe distress. Profusely bleeding ear along with constant vomiting, this little one is already leading a life full of pain and discomfort.
"My baby is barely 8-month-old, he hasn't even reached the age where he can start sitting up on his own. And yet, he is going through so much pain. I have seen his bleeding through his ears, and I cannot explain to you how badly that sight has broken me. My tiny baby is suffering and if I cannot help him get better only because I don't have the required money, I won't be ever able to forgive myself", said the father.
Tragedy comes knocking in at a young age
The trouble started when Thanvik was five months old. After his father took Thanvik to a local hospital in Chennai to get treatment for his recurring fever, the doctors suspected something more serious was at play. Thus started the rush to tests that took months to come up with results. For two months, the family was just taking their son from hospital to hospital, having multiple tests performed. Given those test required superior technological assistance, the expense was high with each costing them close to Rs 30,000. It was only after those results came in did the doctors diagnosed Thanvik a known case of WAS.
"My son can't even talk and he is suffering so much"Thanvik's father Venkalam doesn't understand much about his son's disease, other than the fact that he has to do anything in his power to save him.
"We are not very educated. We have no option than to listen to everything the doctors say. We cannot even question their wisdom, can we? All I know is, every time I visit the doctor for my son's treatment, I just join my palms in front of them and request them to save my son", said the father.
Bone Marrow Transplant is their only optionThe only curative treatment available for WAS is a Bone Marrow Transplant. Thanvik’s older brother was tested for HLA and fortunately, he has matched for donating stem cells for his younger brother's treatment.
This transplant needs to be done urgently in order to prevent Thanvik from succumbing to further infections. His parents are ready to do anything to save their baby but unfortunately, cannot afford the cost of a Bone Marrow Transplant.
Family of meagre meansVenkalam works as a cook in a hospital in Bangalore and makes upto Rs 10,000 per month. They have an elder son who has currently started schooling but due to his brother's ailment, the family is finding it difficult to focus on his education.
"We don't have much and whatever little we had has been spent on my son's treatment. The doctors have given us time till November and we have to arrange Rs 20 lakhs by then. You only tell me, how can a person who earns Rs 10,000 per month arrange such a huge amount. People say that if I can't manage the funds, then I should just probably just leave my son to his fate. I don't know how some people can be so cruel. How can a father just leave his child to die right in front of his eyes?"
How can you help?Thanvik is barely 8-month-old and has a whole life to celebrate. Don't let this disease take away this opportunity. Funds raised through this fundraiser will go towards the treatment of this little angel.
The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.
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