“When my wife started forgetting little things in the house, I thought she might just be distracted. Within a month, she could not remember if she had eaten in the last 2 days. Slowly, she forgot our relatives. Gradually, she lost the ability to talk, and today she cannot remember me or our 2 sons,” 42-year-old Gobind recalls when his wife Maninder’s ordeal began.Maninder has been admitted to the hospital since 19th January 2017. Her husband, Gobind, who had to quit his job, has done everything in his capacity. Through the financial support of many individuals, he has managed to keep her alive and look after her medical needs in the hospital. Now, after spending over a year in the hospital, Maninder needs more treatment to recover.
Gobind, Maninder and their 2 sons at the hospital
Maninder would only forget little things in the beginningManinder, a happy-go-lucky 42-year-old woman, suddenly started forgetting little things. The little slips soon became very frequent. With time, she began to forget more and more. Slowly, she could not recognize her relatives and friends. One day, her hand started to tremble unexplainably, and she was experiencing slurred speech. Gobind took her to the hospital as soon as he realized something was not right.
Maninder is unconscious most of the time and suffers from memory loss when awakeWhenever she does open her eyes, Maninder is unable to speak and doesn’t recognize her husband, Gobind, and 2 of her sons. She doesn’t know where she is and doesn’t listen to anyone. In January 2017, Maninder, herself, walked to the hospital, besides her husband. Soon after, she was unconscious and was unable to move.
Her condition has worsened but it’s crucial to keep her in the hospital and get her the treatments to prevent further progression.
“She is just bones. My wife has been fed through a tube for over a year. This gave her ulcers in her foodpipe as well, and now the ulcers were surgically removed and the tube had to be re-inserted through a hole made just below her rib cage. My children are very depressed and cannot even bear seeing her like this,” – Gobind
Countless tests and still no diagnosisEver since she was admitted, Gobind has got every possible test conducted on his wife. Countless blood tests, scans, and reports were clear and revealed absolutely nothing about her condition. Her spinal fluid was tested thrice, her blood plasma was changed 5 times, but there was still no diagnosis.
Some doctors thought that she might be suffering from an Autoimmune disease. For this, she had to undergo an IVIG treatment for 5 days which cost Gobind over Rs. 10 lakhs. This had no effect. Later, a brain biopsy was done to detect a tumor, but the reports were clear. An MRI scan revealed an atrophy in her brain, but they’re still unable to detect why. All these tests and scans have cost Gobind a fortune, and have exhausted his resources completely.
Gobind consulted doctors all over India and other countriesJust to find out what has happened to his wife, Gobind used his resources and showed countless test reports to countless Neurosurgeons, in India and in countries like USA, U.K. and Australia. Still, he has no answer and feels as if he’s back to square one.
Maninder has been in the hospital for over a year“I have spent everything I had, and every penny I could arrange. I cannot give up on her. I hope for the day she speaks something and can be discharged, but that day isn’t coming.” – Gobind
Maninder needs to be kept in the hospital until a concrete diagnosis is available. Extremely complicated and critical, Maninder’s disease is worsening every day, and her treatment cannot be paused even for a day. Her length of stay in unpredicted and she needs physiotherapy too.
Maninder’s treatment and hospital bills amount to Rs. 2 lakh every month. After quitting his job to be by her side every minute, Gobind has reached out to friends, family, ex-colleagues and even some doctors for help. He has expended all his financial resources and is in dire need of help to keep Maninder’s treatments on-going.
How you can helpWhile doctors everywhere are still trying to figure out Maninder’s disease, Gobind still needs funds to keep Maninder’s seizures and infections in check, while conducting further tests and examinations. He needs financial assistance every month to keep his wife alive in the hospital.
Your contribution could keep Maninder alive.
The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.
Click here to save Maninder.