Born With Two Genetic Diseases, This 3-Year-Old Is Forced To Stay Indoors In Misery

Every time Anoop and Sapna take Anay to the hospital, he simply hugs onto his favourite teddy bear while he gets the blood transfusions and wishes for it to get over soon. Anay is already under many restrictions because of his albinism, a genetic disorder that causes the skin, hair or eyes to have little or no color. He can’t go out in the sun and play like other kids because longer exposure to sunlight can give him a terrible headache. He even runs a high risk of skin cancer. Now his deadly blood disease has added to his struggle. 3-year-old Anay is now fighting two genetic diseases. He's weak and exhausted, and the only time he leaves his house is to go to the hospital.  

The parents are scared that their little son will not live to see his fourth birthday without urgent treatment

Anay was 1-year-old when he suddenly had a fever that was not subsiding. His temperature was very high and the parents were helpless as they saw him not getting any better. They took him to the doctor and several tests were conducted after which they got to know about Anay’s medical condition. He has been diagnosed with a blood disease called Thalassemia Major in which the body makes an abnormal form or inadequate amount of hemoglobin. The doctors have now said that only a bone marrow transplant can help get Anay better.

 Anay celebrating his birthday with his elder brother

“Anay is too small to understand what is going on with him. His little mind doesn’t see reason and wants to have a normal childhood like others in his age. We try to support him as much as we can. He is very fond of toy cars and loves playing with them despite his weakness. Last month, we celebrated his birthday at our home. But the only thought that kept coming back to us was whether we would be able to celebrate his birthday the next year as well.”

Little Anay with his mother, Sapna

The journey to the hospital for the blood transfusions is very hectic but that is the only way little Anay can get any better

Anay needs blood transfusions for every 20 days. If that is not done at the right time, he gets very weak and can’t even get up from the bed.

“We live in Allahabad and we have to take Anay to Lucknow for his transfusions. It is 200 kms away from my place and we have to wake up at 3am in the morning for the first bus to Lucknow before sunrise. After making a tedious journey to the hospital, the entire day is spent in Anay’s treatment. Then we have to come back home the same way. It is all too much for Anay but I am so helpless that I can’t even afford to take him in an ambulance.”

Anoop is struggling very hard to give the life-saving transplant to his son but money has become a major roadblock for him

Anoop works as a life insurance agent and earns about Rs 10,000- 12,000 in a month. He has a family of four to support and he is the only earning member.
 

“I have borrowed from friends and relatives to continue Anay’s treatment. But for the bone marrow transplant I would require another 14 lakhs. I have no idea as to how I will arrange for this much money without any help. I want to see him hale and hearty but how can I do that without any help?”

How you can help

Anay is fighting a severe blood disease that has left him very weak and tired. He needs an urgent transplant to survive but his family can’t afford the treatment. Your generous contribution can give little Anay a second chance at life.

Your support can save Anay's life

Supporting Document

The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team. 

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