“He knows there is something wrong with his body. He hesitates to ask. We never got the courage to tell him. He is just 7! What would he even understand? If the disease doesn’t, fear might just kill him!”
We heard that our son would not live longer than 6 monthsWhen he was just 3 days old, Manikanta's mother noticed there was something different about him while she was breastfeeding. His eyes were yellow and his stomach felt bloated. The family took him to a local doctor who prescribed medicines for jaundice. After a month there was no change. When the problem continued, they went to Vijayawada.
"We roamed from one hospital to the other for 2 months. Nobody gave us an answer. Finally, we heard the worst news. A doctor told us after tests, that our son had just 6 months left because his liver was damaged."
We resolved to do anything to save our sonHearing the morbid fate that the future held for Manikanta, the family took him to NIMS in Hyderabad, hoping to find a cure. They could not afford it, but they just wanted to save him. From there, they were referred to another hospital which turned him away as they did not treat children. Like this, the family ended up at Rainbow.
"Here we discovered that whatever milk he was drinking was not getting absorbed. There was a blockage in his intestines and he needed a surgery. The surgery would be dangerous with his liver condition. We went for it anyway because he was bleeding on the inside. The government scheme helped us through it. "
Everything seemed rosy, and then his liver issues began againManikanta was 2 when his bowels changed color with blood in them. Every month, a new symptom showed up to scare them and torment him. They had to keep running to the hospital. By now, doctors made it clear that he needed a transplant before time runs out.
"We had applied for PM and CM funds. We never received them. It has been years, and only now we have received a response. My husband, Srinivasa, is a coolie getting Rs. 300/day. With this we take care of our daughter (10 years) and our son. Our parents have been supporting us so far. Debt has chased us all our life."
This disease has stolen away Manikanta's childhood
“We used to send him to school for 2 days and that would exhaust him so much that he would be bedridden for 3 days. He even had epileptic seizures at school and we had to rush him to Rainbow.”
How you can help
"We cannot afford to stay in the hospital or in the city. We take the night bus reach the city, get treatment and leave the same day. How can we afford a surgery that will cost us Rs. 16 lakhs?"