15-year-old Vanisha needs aggressive treatment for her blood disorder

15-year-old Vanisha fought hard all her life against a deadly genetic blood disorder. A bone marrow transplant alleviated her pain, but soon after she succumbed to yet another deadly infection that has claimed a right to her life. Vanisha needs aggressive treatment to make it out of this terrible time and emerge a healthy survivor.

Originally from Ramnagar, Gujarat, Vanisha comes from a loving family of four including her father, Rajnish, mother, Priyanka, and younger brother, Avanish. The parents celebrated with joy when their daughter was born, but soon enough they discovered she was ill. At 9 months of age, Vanisha was diagnosed of Thalassemia Major, a genetic disorder resulting from mutated genes inherited from parents causing severe anemia.

A bone marrow transplant was performed in December 2016. Rajnish, a hard-working engineer, had saved up all the money he could so his daughter could get healthy finally after years of struggle against a disease that made her weak. They couldn’t find a perfect donor match so this father gave his cells to save his daughter. The surgery was a success.

Vanisha was diagnosed with Veno-occlusive Disease with CMV viral infection where the veins to the liver are blocked, and her immune-weakened body is infected with a virus that it cannot get rid of. She has decreased liver and kidney function, along with fluid retention in her stomach.

This family is going through enough struggle with their baby girl in pain since she was 9 months old. Vanisha needs an imported medicine called Defibrotide (a medicine for her condition), supportive care in intensive care unit (in case she requires ventilation) and continuous dialysis. The estimated cost for her treatment is Rs. 28,00,000, and this family has exhausted all resources trying to pay off the bills so far.