Our Son Naman was born with a rare genetic disorder called Thalassemia. It is a condition in which the body is unable to produce hemoglobin and hence require blood transfusion every 3-4 weeks, life long. With every blood transfusions excess iron from blood(ferritin) is deposited in major organs like heart, liver, spleen etc can cause major problems in future. There is also risks of blood transmitted disease like hepatitis A, B, HIV etc
He was only three months old when He was diagnosed with beta thalassemia major. It was the worst day of our life when we came to know that our little Champ would need regular blood transfusions throughout his life to survive and that He won't be with us for too long as average age for Thalassemia patients is 20-25. It's heart wrenching to think this way that even after monthly transfusions and chelation therapy, the age span is so less.
The only cure for this disorder is Bone Marrow Transplantation (BMT) from a fully matched donor.
We came Ahmadabad in CIMS Hospital where we met "Dr. Deepa Trivedi" who's pediatric Hematologist Oncologist there. She adviced us to have HLA typing test within the family first , With god's grace his bone marrow got matched with his Father "Amit Dhirwani" . It’s haplo transplant.We were more than happy but the cost is too high for this operation which is next to impossible for me to arrange. Doctor gave estimation of "14,00,000/- INR" . We've somehow managed sum of INR 2,50,000/- from CM fund and other sources but we still need a huge amount to get this operation done.
I'm her to ask you for your support to save my son's life. I would be highly obliged if you can help me in this. even the smallest of help will be like blessings to me. Please come forward and help my son so he can live his life healthy.