After months of looking for answers about his condition, his dreadful disease was finally diagnosedFor nearly 8 months, Manju and Rukumani took Lohit to different hospitals near Mandya, Karnataka, looking for answers about their son’s deteriorating health, but no one could diagnose his disease.
“We knew we were losing him, and it felt like we couldn’t do anything to help him. We finally took him to Bangalore, it was our only hope. ” – Manju, Father.
In Bangalore, Lohit was diagnosed with paroxysmal nocturnal hemoglobinuria, a blood disease that impairs the production of blood cells by the bone marrow and destructs red blood cells which cause premature death. This disease affects between one and five per million. He also has myelodysplastic syndrome, a group of rare disorders that impairs the production of healthy cells.
Lohit can be saved with a bone marrow transplant, but his parents can’t afford itEver since his diagnosis, Lohit has been going for checkups every week. He hasn’t been able to go to school in 4 months now because he’s extremely susceptible to infections and is too weak to do anything. His disease is extremely progressive and degenerative. However, Lohit can be saved if he gets a bone marrow transplant in time. His younger sister, Yojana (4), is a matched donor, but affording 14 lakhs is beyond his helpless parents’ means.
Manju’s earnings from his small tea stall aren’t enough to save Lohit
“Two years ago, I opened a small tea stall near the busiest road in our village. But It’s a very small place and not a lot of people live there. Even if I sell 100 cups of tea and coffee in a day, I will not be able to afford my son’s treatment.”
Manju and Rukumani come from a humble background. He set up his tea stall after much difficulty. Now, he tries and works overtime to save for Lohit’s treatment, but even that isn't enough. While there is hope for Lohit, his parents don't have the resources to save him.
How You Can Help
Lohit’s only wish is to go back to school and play with his friends. He’s too young to understand the implications of his disease and Manju is too afraid to tell him. Manju has done all he could to try and save for the bone marrow transplant that can save Lohit, but he’s falling short. Lohit’s sister is a matched donor. He now needs your help to fight his life-threatening blood disease.