“Sanskar is a jovial and naughty child. He wants to learn karate so that he can ace the police training when he grows older. He keeps telling me how he will fight all the bad guys when he grows up! Unlike other children, my son absolutely loves eating vegetables. It feels like he is already preparing to go for his training. He’s only 5, but he’s so focused. We are so proud of him. But Sanskar has a dangerous disease that is making him weaker by the day. He’s strong, he will fight it, but his willpower is just not enough.” – Pragati, mother
Over the years, the disease has changed little Sanskar
“When he was just a baby, we started noticing that his skin was turning white in colour. When we took him to the doctor, we learned that his blood was becoming excessively thick and he would need monthly transfusions. He has been given heavy doses of medicines too but now his immunity is also low. He falls ill all the time. He cannot play out with his friends and sister for too long because he gets tired. Now he has big pimples and blisters on his face too. We just want him to have a normal life.” - Navnath, Father
There is a cure for Sanskar’s disease – a bone marrow transplant. He has Thalassemia, a severe blood disease that affects the body’s ability to produce haemoglobin. For 5 years now, he has been surviving on blood transfusions. However, Navnath and Pragati, even with help from family, can’t afford his transplant.
The hospital is like a second home to him
“He is so comfortable with coming to the hospital, it is like a second home for him now. Since he was 2 months old, Sanskar has been getting blood regularly. He thinks this is a part of everyone’s life because he hasn’t known any other life. It makes me so sad to watch him believe that this is what normal childhood is like. This is not what he deserves.” - Navnath
They will never be able to afford his life-saving transplant in timeSanskar and his family live on the outskirts of Nashik. Navnath is a farmer who earns not more than Rs 12000 annually. They end up spending more money on their hospital visits to Mumbai than their monthly earnings. Until now they have spent lakhs of rupees by selling off their jewellery and borrowing from friends and family. However, they will never be able to collect such a high amount even if they save every rupee they earn in all their life.
Sanskar needs your help to fight this disease once and for all.