A Hole In Her Heart Took Her Eyesight And Now, She Is Losing | Milaap
A Hole In Her Heart Took Her Eyesight And Now, She Is Losing Her Life

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  • SP

    This fundraiser will benefit

    Sana Parveen

    from Jaipur, Rajasthan

12-year-old Sana, who hasn’t lived with her parents since birth due to poverty, has been close to death multiple times. Due to a congenital heart disease and a hole in her heart, she has been paralyzed, undergone 5 brain surgeries, and even lost her eyesight. Recently, she underwent a corrective heart surgery but she needs to stay in the ICU followed by additional treatments. Her family has given all they had but they just can’t seem to help her anymore.

Sana's grandmother Bano, Ismail and Sana

Sana was so close to death and hung on by a thread

Salim Mohammad, a poor cab driver in rural Rajasthan, and his wife, Anisha had twins, Sanya and Sana. Due to poverty, they could not afford to raise two children. Anisha’s mother, Bano, took Sana under her care and she’s been there ever since.

Born with a severe heart defect, known as Tetralogy of Fallot, and a hole in her heart, Sana’s anomaly was diagnosed when she was just a baby. Lack of knowledge, awareness, and funds made it hard for Sana to undergo the heart surgery when diagnosed.

“We come from a very small village in the district of Ajmer. We did get her diagnosed when she was a baby. The local doctor said that she should undergo surgery when she’s a lot older and we just believed him. This was a long time ago and I wish I had more knowledge. She could have been fine if she underwent surgery 10 years ago.” – Ismail, Sana’s uncle.

Over 5 years ago, Sana suddenly fainted in school. Due to a big hole in her heart, her oxygen levels were terribly low and her brain stopped functioning. She was so critical that she had to undergo 5 life-saving brain surgeries.

Sana in the hospital, unable to see

Sana has been blind for over 5 years

“No one thought she was going to make it, but she did. She was even paralyzed but she recovered slowly. She fought death and won but when she gained consciousness, she couldn’t see anything. Her brain had been damaged so severely that she lost her eyesight.” – Ismail

Sana's caretakers since birth: Her grandmother and uncle

Sana's life has turned upside down

It’s been 5 years since Sana lost her eyesight. Her life has completely changed. She is still in the 3rd grade. She is severely depressed and doesn’t speak at all, she is still somewhat paralyzed and when she walks it seems like she’s dragging her foot. She needs help with everything she does and this has taken a toll on the 12-year-old's mental health.

“It’s very heartbreaking to see her like this. She looks so sad all the time. She starts weeping frequently and my mother (her grandmother) tries to console her but we all end up crying. It feels like her whole life has been taken away from her.” – Ismail

An urgent heart surgery was needed to save her life

Recently, Sana’s condition had become so critical that she needed to undergo an urgent cardiac surgery. Her heart was at high risk of failure.

“Her fingers were so blue. She was breathing so heavily. Even while eating, she would stop to take deep breaths to help her swallow. She would climb two steps and sit down to rest. She had just become so weak and her body wasn’t developing at all. Sana is already blind and her condition was terrifying.” – Ismail

Only intensive care and additional treatments can save Sana

Even after the surgery, Sana needs to stay in the ICU and get additional treatments. Her family has given all they had. Ismail has asked his friends to help him from time to time and Salim is trying very hard to arrange for some money. They’ve spent over 3 lakhs on Sana until now. They need an additional Rs. 1.5 lakhs to help her live.

Sana has high chances of recovery, but this is only possible if she gets the additional life-saving treatments first. 

How you can help

After an urgent heart surgery, Sana has no option but to remain in the ICU and then receive additional treatments. The 12-year-old is still blind due to her delayed treatment but she has high chances of recovery. Her family has spent everything they had and now they are in need of your support to help her live.

Your support will ensure Sana's failing heart recovers again and helps her live.

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