He’s The Only Child In India With This Deadly Disease, He Needs Help | Milaap

He’s The Only Child In India With This Deadly Disease, He Needs Help

Aarav is only 4, but his life is nothing short of extraordinary. He isn’t like other children his age. In fact, Aarav isn’t like any other child in India. He’s the only child in the country to suffer from a rare and dangerous disease that has made his immune system so weak that he’s had diarrhoea for the past 14 months.

They told us he’s the 7th child in the world to get this disease. It’s reduced him to just bones. He’s only 7 kgs now…look at him, you can count his ribs, his spine. He’s so weak that he has to be carried everywhere, he can’t eat anything he likes. This is not the kind of life he deserves to live. He’s disappearing in front of our eyes.” – Sandeep, father



No medicines can cure of Aarav of immune deficiency disease due to caspase-8 mutation. It’s unheard of in India, and it was many hospitals later that Aarav’s parents found out about this disease. He needs a bone marrow transplant in the next 7 days. Else, Sandeep and Arthi will lose their son.

How can I tell you that he was a happy child when this is the only life he has known?


Aarav has always been a sickly child. What hurts Sandeep the most is that his son was born with the disease, it’s genetic. But for 4 long years, no one could tell him what was making his son so sick.

“I’ve carried his frail body from one hospital to another, with no answers. It was finally in Mumbai that his condition was diagnosed a few weeks ago. Now there’s no other way but for him to get the bone marrow transplant. Nothing else will work. He hasn’t ever gone to school, hasn’t ever played…this can’t be the end..”



Ask Sandeep how Aarav was before this disease, and he has nothing to say – his only child has always been in pain. Whether it was a fever, cold, cough or even a small infection. He has been in and out of the hospital and now, isn’t even scared of the doctors anymore. He just cries out in pain.


The next 7 days will decide Aarav's fate

As hard as it has been for little Aarav, it has been as difficult for Sandeep and Arthi to watch him go through this. Sometimes, helplessly. It has also been difficult for them to afford his tests and hospitalizations. They have spent over 7 lakhs so far – loans, friends and family. The past three months have been the worst, though.

“This is the sickest he’s ever been. I haven’t gone to work in 3 months. I used to work at a construction site. I earned Rs. 7,000 per month. It was never enough to take care of my Aarav…how can I leave him now? There so much running around to do at the hospital.”



Aarav needs the bone marrow transplant in the next 7 days. The earlier, the better. But his parents are so helpless and live in fear of losing him every day. Your support will finally give Aarav a pain-free life. He deserves to know health and happiness.

Medical Report Page 2
Medical Report Page 2
Medical Report Page 1
Medical Report Page 1
Estimation Letter from Sahyadri Speciality Hospital
Estimation Letter from Sahyadri Speciality Hospital
Estimation Letter
Estimation Letter
Ask for an update
15th October 2019
Dear Supporters,

Thank you for your support and prayers.
Aarav's Bone Marrow Transplant has been successful, however, he will remain admitted in the hospital for a month as his cell count is fluctuating. He's recuperating well.

Once again thank you for the support and prayers. Please continue to support and pray for him.

Dear Supporters,

Thank you for your support and prayers.
Aarav's Bone Marrow Transplant has been successful, however, he will remain admitted in the hospital for a month as his cell count is fluctuating. He's recuperating well.

Once again thank you for the support and prayers. Please continue to support and pray for him.

1st October 2019
Dear Donors,

Thank you very much for your support.
As you know Aarav has been admitted to hospital and he underwent the transplant yesterday. We will know more soon. Please pray for him. We will keep you posted

Thanks

Regards,
Sandeep Tagadkar
Dear Donors,

Thank you very much for your support.
As you know Aarav has been admitted to hospital and he underwent the transplant yesterday. We will know more soon. Please pray for him. We will keep you posted

Thanks

Regards,
Sandeep Tagadkar
19th September 2019

Dear Supporters,

We have some good news to share with you.  Aarav’s Bone marrow Transplant has been scheduled for 20/09/2019 and his father will be the donor.

Please pray for him. We will keep you updated regularly.

Thank you!

Regards,
Vinayak

Dear Supporters,

We have some good news to share with you.  Aarav’s Bone marrow Transplant has been scheduled for 20/09/2019 and his father will be the donor.

Please pray for him. We will keep you updated regularly.

Thank you!

Regards,
Vinayak
Rs.1,916,560 raised

Goal: Rs.1,930,000

Beneficiary: Master Aarav Ta... info_outline

Supporters (1377)

A
Anonymous donated Rs.1,000

Get well soon little one

DM
Dileep donated $7.20
AA
Abhinav donated Rs.2,500
DM
Dileep donated $14.38
C
CHERRYAGARWAL donated Rs.200
A
Anonymous donated Rs.1,000