“He was perfectly healthy when he was born. The problem started nearly a month later. We thought it would go away, but it turned out to be so much worse.”
Devansh is just 1 year old and is battling for his life. He was fine until a month after the delivery. But after that, his skin and eyes gradually started yellowing, and his stool became pale. Devansh started getting fevers and cried constantly. When his parents took him to the doctor, they were told that Devansh had Biliary Atresia, a birth defect of the liver. The doctors also told his parents, Venkatesh and Subhashini that he would need a liver transplant because his liver was too damaged.
Devansh is the first child of Venkatesh and Subhashini and all their hopes for a happy parenthood came crashing down with his diagnosis. Initially, after his disorder was diagnosed, he underwent a surgery to rectify his condition. There was only a 30% chance of success and his parents desperately hoped it would work. Unfortunately, the surgery didn’t work and his condition continued to worsen. Devansh's liver is now damaged and needs a liver transplant to live.
“He’s always crying. He’s so small that he can’t even tell us when he’s pain. It’s a terrible thing for a parent to go through, to watch your baby cry and suffer so much at this age. It is something that forever changes you,” says Venkatesh.
Devansh suffers from a lot of pain and discomfort due to his liver condition. He is crying all the time and his parents can do nothing more than carry him and try to soothe his pain. He keeps getting fevers and takes a long time to recover from them. Subhashini and Venkatesh have lost their sleep over their only child’s miserable condition. They can only wish to take away his pain but can do no such thing.
Nothing had prepared Venkatesh and Subhashini for the trauma they’re currently facing. They are willing to do all it takes, in order to save him. If only money came in as easily as determination. Sadly, due to their financial state, they can’t afford the treatment that’ll cost lakhs of rupees.
Venkatesh works as a daily wage labourer and makes a meagre income per month. Within this amount, they try their best to provide for food and basic necessities. Paying for this treatment is well out of their means and they don’t know what to do.
“We have borrowed money from everyone we could think of, and they all helped us. But now, even they don’t have anything to give us. Money is all we need to save our son's life, but that is what we don't have.”
So far, for his treatment, they have spent close to Rs 5 lakhs, by borrowing money from friends and relatives. But even that is a door that has closed for Venkatesh. His chances of saving Devansh are getting more and more dismal with each passing day.