“His legs and arms start shivering and he starts bleeding from his nose. Whenever he starts bleeding, he has to be taken to the hospital as soon as possible or he could die. Naziya has been handling everything on her own when I’m working, but I can’t stay away any longer. My child needs me.” – Imran, father
Adnan has a rare blood disease called Wiskott Aldrich syndrome, as a result of which he has an abnormally low platelet count. The disease affects 1-10 in a million. Adnan was diagnosed when he was just 7-months-old, and without a bone marrow transplant, it can turn fatal.
Adnan can’t be left alone even for a minuteAdnan always has someone to accompany him, even to the bathroom. At home, it’s his mother, Naziya, and in school his teachers and aayah (help) have to monitor him, looking for any paleness, red marks on his body that could indicate a dip in his platelet count. Last year, his condition deteriorated so much that he could barely sit up when he came home from school. Adnan hasn’t gone back to school since then. He misses his friends and teachers, but staying at home is the only thing that can keep him away from deadly infections.
“He refuses to tell anybody when he’s in pain because he fears we will take him to the hospital. He’s so scared of the injections, but his disease has advanced.” - Naziya, mother
They have to beg relatives for money to even buy groceries, the treatment is beyond their meansFor the past 7 years, Imran has been spending a bulk of his salary on Adnan’s treatment. After paying his room rent and household items, he is able to send Rs. 25,000 home. However, every time Adnan gets admitted, they end up spending nearly Rs. 25,000 on his tests and medicines alone. Imran and Naziya haven’t been able to save anything over the years, and now even borrow money for groceries from relatives. A bone marrow transplant costing 33 lakhs is beyond their means.
Imran has been toiling away in the gulf to afford Adnan’s treatment so far. However, now Adnan’s condition is serious. He needs a bone marrow transplant at the earliest. Imran needs your help to save his son before it’s too late.