“He has been fighting to stay alive since birth. He has gone through a lot… but still smiles and manages to make us smile too. We want to forget everything when he calls us ‘Mumma’ and ‘Papa’…we want to forget all the pain and the fact that we could lose him too. But how can we? How can we, when we watch his misshapen head cause him so much suffering.” - Jyoti, mother.
Jyoti and Nitin’s almost two-year-old son was born premature, at just 5 months. He had major issues related to his birth – from underdeveloped lungs and abnormal body weight to bleeding in the brain. While other problems were resolved after he underwent prolonged treatment in the NICU, there was significant damage caused to the brain which was not resolved… and these poor parents realised it much later.
He was diagnosed with craniosynostosis, a condition in which the sutures close too early, causing problems with normal brain and skull growth. Without advanced surgery, he can even lose his memory completely and become disabled.
The left side of this child's body is weak due to his brain’s structural deformityAs their baby was attaining milestones, Jyoti and Nitin noticed that his head looked different. It was almost conical in shape from the beginning, but it was now completely misshapen. There was visible growth on the right side, but not the left which looked smaller in comparison too. They took him to doctors who suggested they wait it out. But it only kept getting worse to the extent that it affected his postur, which curved to one side.
“He cannot use his left hand as well as he can use his right one. He walks by putting more pressure on his right foot too… his body is leaning towards the right. We tried therapy but it’s not working. Only surgery can correct this.” - Nitin, father.
This father is still reeling under debts incurred from his baby’s premature birthNitin Yadav is a mechanic based in Mumbai, who earns only INR 12,000 a month. When his baby boy was born prematurely in March 2021, the little one had to undergo treatment in the NICU for over 5 months. He could not afford the treatment despite selling off any jewellery and possessions he owned. He had to rely on loans taken from friends, family and moneylenders. He had not finished paying back even the interest incurred on these loans when his son was found to require another surgery.
“I have nothing left. I cannot afford this surgery… but without it, my child will not grow up normally and can even have long-lasting damage to his brain. He will never have a normal life without this. Please help us save him from a life of misery.” - Nitin
With your kind help, these parents can get their baby boy the surgery that he urgently needs. Click here to contribute.