His struggle to stay alive started at just 6 monthsWhen little Saksham was only 6 months old, Sunita and Dashrath were told the baby did not have enough blood. A week later, he was diagnosed with thalassemia major – a blood disorder in which there are abnormally few red blood cells. At that time, they had little idea how the disease would change their lives. The farmers are helpless and tired now, but they refuse to give up on their son. Saksham's 8-year-old brother and donor, Nihar, is determined to save him as well. He feels proud that only he has the "superpower" to save his brother's life.
“We only went for a check-up, but my son was admitted for a week and underwent an urgent blood transfusion. I sat there crying, watching him cry in pain. Just when I was starting to think it will soon be over, we were told that he’d need these transfusions every month. It wasn’t a one-time thing. He used to be such a happy baby. Now, he's 6 years old, and he just sits lifelessly, too weak to even lift his head. He cries and refuses to eat. I can’t see him like this!” – Sunita
Every month, the couple fights their own battles to get blood for Saksham's transfusionSunita and Dashrath live in a small village in Maharashtra. They travel hundreds of kilometers by bus, to get to the hospital every month. Owing to the distance and transport, there are unavoidable circumstances when the transfusion is delayed and the parents grieve over the condition of their son as he weakens.
“There have been times when there was no blood. I would rush from one bank to another in desperate hope, for days together, while Saksham got weaker and weaker…” – Dashrath, father
His brother can’t wait to make Saksham's sickness vanish but his parents can't afford itAfter years of transfusion, considering the risks involved in monthly transfusions, a cure has been suggested. A bone marrow transplant at the earliest is the only solution to his sickness. It will cost them 15 lakh rupees.
“When we go to the farm, Nihar takes care of Saksham. Just one word from Saksham, Nihar does it for him, tirelessly. Ever since he told Saksham about the transplant, he has been telling our relatives that his brother is going to give him magical blood that will make his disease go! We feel helpless, because we can’t afford it…” – Sunita