“My boy has been in pain for the last 13 years. No child should ever undergo a life like his. When he was just a little boy… he got wounds on his hands and feet that were painful and itchy. He also had an ear infection and swelling on the sides of the face. We were worried and first took him to a doctor. Since then, we have been to multiple doctors who all said that it is due to low hemoglobin.” – Venkatesh, father
Tragedy struck Raghava when he was 11 and on the way to a hospital for a checkup, in the form of pneumonia. By the time they reached there, Raghava had lost his eyesight in both eyes. A few days later, with the help of an eye specialist, Raghava regained sight in his right eye. However, that small victory did not last longer than a year...
First his eyes, now his lungs
“We were happy that our son regained sight at least in one eye. But again God failed us. He lost his eyesight in that eye again within a year. Imagine how difficult it would be for him to have got some hope that he could see at least partially and then losing it all once again. Now, it is even worse… It's like his body is slowly giving up on him part by part. Now he struggles to even breathe properly due to his lung infection. I don’t understand why such bad things are happening to him… he doesn’t deserve such pain…” - Chitra, mother
He is fond of music and wishes to play an instrument...but his father cannot afford it.
Raghava is very fond of singing and wishes to learn a music instrument. He begs his father every day to buy him an instrument. His father breaks down crying when he talks about how helpless and guilty he feels that he cannot afford to buy him an instrument and make arrangements for a tutor who can teach a visually impaired child.
Raghava’s family is deep in misery and each one of them is giving strength to the other by staying strong. Raghava does not even complain of his pain fearing that it would make his father sad. His little sister is seen consoling her parents and keeping her brother’s spirit alive with encouraging talks.
“Every day when I return home from college, my brother asks me about my day. I share every moment of my life with him. I know clearly that he misses going to college and having a normal life. He doesn’t, however, express his thoughts. He understands his condition and tries to enjoy the experiences through my words. It’s heartbreaking to see that.” – Brinda, sister