At only 3-months-old, Nivik can get a heart attack and die.
“He was only 1-month-old when he started turning blue. Every time he tried to drink milk, he would turn blue, start choking! He’s my first baby…as a first-time mother you’re anyway scared that you’re always doing something wrong, but watching him like this…” – Sunita, mother
Sunita now can’t leave her baby for even a minute. He cries so much that only her voice can calm him down sometimes. Sometimes, not even that. He doesn’t sleep, and when he does, Sunita watches over him, worried that something might happen.
“I keep checking different websites on my phone to see what all can happen to him, I want to be prepared…in case something happens, I don’t want to waste a single second panicking. But I know…I know none of this will help. A surgery is the only cure.”
“He falls sick very often..cough, cold, everything! But we can’t keep taking him to the hospital because we can’t afford it. Imagine, we can’t even treat his cold now…how can we afford the surgery that is going to cost us lakhs? We can’t do anything but wait…”