“Amulya keeps saying it hurts. She has started saying that she hopes something happens to her and that she dies. She never used to speak like this before. She has stopped going to school, we try to persuade her, but she is so weak, she just lies down and refuses to get up.” – Lalithamma, mother
She is their precious child and it breaks their heart to see her sufferAmulya was born with Thalassemia Major, a severe form of the disorder where her body does not produce any healthy red blood cells. Since she was three months old, she has needed blood to stay alive. She is now 11 and her condition has worsened. Now, she undergoes blood transfusions once in two weeks. Without it, she is unable to move and a painful lump forms in her stomach. Her parents are daily wage workers who have put their everything into taking care of her.
“Whatever we earn, we have never kept anything for ourselves and spent it all on her treatment. Our older son has to work and support his education by himself because we don’t have enough to send him to school. But as parents, what else can we do?” – Lalithamma
Their greatest desire is to save their daughterAmulya’s parents are both daily wage workers in a village near Chitradurga, Karnataka, and together, they earn about INR 3,000, a month. Since the pandemic began, work is hard to come by and they often go to other villages looking for more opportunities. Covid has also impacted blood supply, and Amulya needs transfusions twice a month. When they have to purchase blood from outside, they often end up spending INR 4,000 that month.
“We can’t see our daughter in so much pain. We went to a big hospital to see what could be done for her. Our son was tested and he is a perfect match for a surgery that can cure Amulya. Please think of my daughter as your daughter and somehow help her get the surgery that will make her better.” – Ramanjaneya, father
Amulya has a good chance of getting better if she gets a bone marrow transplantUnable to read or write themselves, Amulya’s parents take great pride in the letters that she is able to write. But this illness has marred her life. She can’t function without blood transfusions, and is very thin and short for her age. Without timely medical intervention, the condition can become dangerous and put her life at risk. With her brother, David, being a 100% match to donate stem cells, her parents hope that their daughter too can live a life without pain and sickness.
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