"Support Me In Giving My Daughter Zoya Her Life's Best Gift For Life" | Milaap
"Support Me In Giving My Daughter Zoya Her Life's Best Gift For Life"
1%
Raised
Rs.4,00,892
of Rs.6,00,00,000
153 supporters
  • RA

    Created by

    Ramzan Ali
  • ZR

    This fundraiser will benefit

    Zoya Ramzan Ali

    from Thane, Maharashtra


Hi,


Zoya will turn 8 years old this October and with every passing birthday, our worries keep rising. My name is Ramzan Ali and I am here to raise funds for my daughter Zoya. She is a beautiful, smart, and loving baby who has been diagnosed with Spinal Muscular Atrophy Type 2.



SMA Type 2 is a rare genetic disease by the progressive loss of motor neurons, and the nerve cells that control voluntary movements, which leads to muscle weakness and muscle wasting. We have learned about this new drug Evrysdi, now available for all SMA type patients which are noninvasive, less expensive compared to other available drugs, and can be taken at home.

The Indian Express article on 29th July confirmed the drug is available in all major cities of India.

https://indianexpress.com/article/cities/pune/roche-launches-approved-treatment-for-sma-patients-evrysdi-7428955/

Since her diagnosis when we were told there is no medicine, no cure, there has been not a day passed without the thought of what can we do for Zoya? Feeling helpless and anxious. It was only our faith in Allah and hopes that has kept us strong for her and not accept seeing our daughter succumb to this dreadful disease. With this initiative, we hope we can see Zoya treated and given a chance to live. It will be no less than a miracle. This is all we want in this life.

As the amount required is huge, I request you to kindly contribute towards the treatment and help during this time of need. Each contribution is important!
Please help us raise this amount by clicking on the donate button and sharing this page with your friends and family.
We are grateful for your help and wishes.

Thank you.
Ramzan Ali

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