Help Vishweshwar Fight Alkaptonuria A Rare Disease | Milaap
This is a supporting campaign. Contributions made to this campaign will go towards the main campaign.
Help Vishweshwar Fight Alkaptonuria A Rare Disease
1%
Raised
Rs.700
of Rs.1,500,000
3 supporters
  • AG

    Created by

    ANMOL Goel
  • VC

    This fundraiser will benefit

    Vishweshwar Chiluka

    from Hyderabad, Telangana

My brother, Vishweshwar Chiluka has diagnosed with Alkaptonuria a rare disease. https://rarediseases.org/rare-diseases/alkaptonuria/. Due to Alkaptonuria, he is suffering from Lombard, Thoracic & Cervical Spondylosis, Rheumatoid Arthritis, and Osteo Arthritis. He is currently admitted at AIG Hospital, Hyderabad, Telangana, and needs support for at least 3 years to recover from Alkaptonuria which is a very rare condition. Before diagnosed with this rare disease, he has undergone several surgeries to his legs and back in the last ten years which are caused due to the said condition but not identified early due to its rarity. Last month his condition got very critical and was admitted to AIG Hospital, Gachibowli. Though he is struggling with his condition for the last few years he was able to manage for himself in terms of treatment and its associated costs. As a sole earner in his family, he ran out of his savings and all possible personal funds from his family. Now he needs support to cover his hospital expenses and continued medication for 3 years. Due to its rarity, the medicine (Cap. Orfadin / Nitisinone 2mg) is too expensive and costs around $1500 per month.


He is having two school-going daughters studying 2nd grade and 7th grade respectively and their future is also dependent on his recovery.

We are requesting everyone who reads this to please contribute any amount they wish, your help is very valuable to us. No amount is a small amount and every contribution is used to cover my brother's hospital expenses and the purchase of expensive medicine.

Please help my brother, We need your support for the treatment of my brother's rare condition.

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Summary
He has undergone several surgeries which are caused by Alkaptonuria in last 10 years, but the root cause was not identified then.
In the month of November-2020 the root cause was identified as Alkaptonuria  which is a rare disease by Dr.Jugal Kishore Kadel, Consultant Adult and Pediatric Rheumatologist, KIMS Hospitals, Hyderabad.
Due to Acute Stomach Pain Admitted at KIMS Hospital on 09-Dec-2020 & Discharged on 15-Dec-2020.
Due to Acute Stomach Pain Admitted at AIG Hospitals on 18-Dec-2020 & Discharged from AIG Hospitals, Gachibowli on 24-Dec-2020.
Due to Acute Stomach Pain again Readmitted at AIG Hospital's, Gachibowli on 31-Dec-2020 and undergoing treatment now under supervision of Dr.Nageshwar Reddy founder.

Please see below documents section in this page for diagnosis report, medical prescription, hospital summary and medicine cost estimate documents for your reference.
















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