My Mother fighting Rarest Disease, Urgent Need to Buy Ventilator | Milaap
My Mother fighting Rarest Disease, Urgent Need to Buy Ventilator
12%
Raised
Rs.1,19,082
of Rs.10,00,000
137 supporters
  • Harsh

    Created by

    Harsh Kashyap
  • SK

    This fundraiser will benefit

    Susheela Kashyap

    from Lucknow, Uttar Pradesh

Dear Donors ,

My mom is having  world rarest a neurological disease ,know as Motor neuron disease also Called ALS  ,( which Scientist Stephen hawking had)  which  take your all voluntary movements , like walking , talking , eating and even breathing .   She can't walk,  eat having feeding tube  , can't talk,  now need help in breathing .Help my mother to get a ventilator for breathing support . 🙏🙏

Currently my mom is at home , she is on tracheostomy with 24hr ventilator and oxygen support . She is getting better slowly , Currently We need your  Urgent help ,  For now she can not breath without ventilator support , Her spontaneous triggers are irregular, ALS patient need long term ventilation , so for that we have to buy a Ventilator ,Currently we have rented a ventilator , which is costing us huge  rental amount . Need urgent funds to buy a Ventilator , We are using  ResMed Astral 150 Ventilator  . The doctor set the ventilator mode to SIMV mode .ResMed ventilator cost  around 4lac+ (5405USD +) 
Some link about ALS , tracheostomy and Ventilator.  
https://www.youralsguide.com/tracheotomy-and-ventilation.html 
https://www.youralsguide.com/invasive-mechanical-ventilation.html

Me and my sister are the primary caregivers , Currently My mumma need a 24hr monitoring , so we can not go outside or even  can't do any work , not even from home Due to tight  daily routine.My father is only earning person in our home ,we are not able to handle bills .

 We need  your constant prayers  , your prayers are too powerful . We  need Urgent help from all of you , Every penny count  , Your contribution will be extremely helpful .We need Everyone support. Share it to maximum people , And tell them to do the same .🙏🙏🙏🙏
Brilliant studies are going on,  Soon there will be effective results .  till then help my mom fight this battle. 
ALS research going on.

25-06-21
Currently my mother is in ICU , due to breathing distress ,  we are in Medanta hospital lucknow . i need your Urgent  help. 🙏

My name is Harsh and I am here to raise funds for my mother . We are getting a bill of 95k-1 lac per day , we are paying 1lac per day for now  , all from My father savings , he is the only earning person in our family . Need your  urgent support 🙏 

My mother Susheela age 50 had been diagnosed with the rarest of the disease Amyotrophic Lateral Sclerosis which is one of the most severe disease existing ( Stephen Hawkings also had this) . This disease effects the motor nerves of the body ,which leads to non working of Muscle,  as it progresses, makes it difficult to carry out the basic activities like walking , talking even causing difficulty in swallowing and  even breathing.

ALS affects about 2 percent of the entire globe , it is a life threatening disease .
I as the primary caregiver , i don't go to work and help my mother in daily activities. I  want my mother to come out of this dreadful disease as a fighter . 



WHAT CAN YOU DO?
1. Donate money 
2. Raise awareness among people to help us


I need your support and help to fight this disease 🙏🙏. I request you to help me in anyway possible , every penny counts .


Susheela  is suffering from Motor Neuron Disease also known as Amyotrophic lateral sclerosis(ALS) . She is been treated in Medanta Lucknow hospital.She was
Diagnosed with MND on 29 -Jan- 2019 at SGPGI, LUCKNOW. And later confirmed at AIIMS ,DELHI on 25 April 2019.

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