Help Srabasti With Myasthenia Gravis | Milaap

Help Srabasti With Myasthenia Gravis

Hi all,

Our fifty year old daughter Srabasti was diagnosed with Myasthenia Gravis (a rare autoimmune condition with no known cure) last month which until last week was being controlled with oral medication. However she suddenly suffered crisis mode causing severe breathlessness, slurring of speech, blurred vision, restricted limb movements and inability to swallow. Doctors advised IVIG was needed immediately.

We are retirees and Srabasti is single and lives with us. She is a secondary school teacher and has missed work due to this rare condition. Her salary will not cover the costs of ongoing IVIG and surgery. She is not being paid for working days missed as her leave allowance has already been exhausted. A Thymectomy surgery to remove the thymus gland is the next possible course of action.

Cost of the current course of IVIG is INR 3.5 lakhs and the hospital stay is approximately INR 2 lakhs. Thymectomy surgery will  be a further INR 2 lakhs. In addition there will be ongoing lifetime costs for medication and emergency treatment for any future crisis episodes.
Please pray and keep her in your thoughts. Any financial assistance you can offer will be deeply appreciated. 

Thank you.

31 March 2019
Srabasti has had a major setback and been admitted to the hospital on 27 March 2019 with severe restrictions in her limb movement and breathing difficulties. The treating neurologist has recommended starting 8 sessions of plasmapheresis starting immediately as she has not responded significantly to the IVIG treatment or the oral medications.  She has had a number of additional tests done including an ANTIMUSK antibody test and is going to be in hospital until there is some response to the plasmapharesis. She is unable to lie down due to the breathing difficulties and has been sleeping in a chair for 3 to 4 hours a night.

What is plasmapheresis?

It is a method of removing blood plasma from the body by withdrawing blood, separating it into plasma and cells, and transfusing the cells back into the bloodstream. It is performed especially to remove antibodies in treating autoimmune conditions. The process is similar to dialysis and takes approximately 4 to 6 hours per session. It is a short term treatment to address severe MG symptoms. The cost of the treatment is around 70,000 INR per session.

Please keep Srabasti in your thoughts and prayers.
Thank you
Admission letter
Admission letter
Estimation Letter
Estimation Letter
Medical Report
Medical Report
Ask for an update
11th August 2019
Dear Supporters,

Thank you all for the support and love.

Srabasti is currently stable with some good days and other difficult days. Doctors are monitoring with some change in dosage of medicines as they take some time to take effect.

Thanks
Dear Supporters,

Thank you all for the support and love.

Srabasti is currently stable with some good days and other difficult days. Doctors are monitoring with some change in dosage of medicines as they take some time to take effect.

Thanks
10th June 2019
Dear Supporters,

Here's a quick update:

Srabasti is stable after the last plasmapheresis. The effect of the procedure is expected to wear off after 3 weeks (around 11 June). Please keep supporting and praying that she continues to stay stable,
If symptoms reappear, the doctor has decided to admit her to the hospital and administer a course of Rituximab injections over 4 weeks.

Thank you.
Dear Supporters,

Here's a quick update:

Srabasti is stable after the last plasmapheresis. The effect of the procedure is expected to wear off after 3 weeks (around 11 June). Please keep supporting and praying that she continues to stay stable,
If symptoms reappear, the doctor has decided to admit her to the hospital and administer a course of Rituximab injections over 4 weeks.

Thank you.
21st May 2019
Dear Supporters,

Here's a quick update:

Srabasti has completed 5 sessions of Plasmapahersis following the last crisis. The doctors are hoping for medication to take effect however there is a possibility that further treatments such as IVIG may be required as she has not responded as expected.

Keep supporting!

Thank You
Dear Supporters,

Here's a quick update:

Srabasti has completed 5 sessions of Plasmapahersis following the last crisis. The doctors are hoping for medication to take effect however there is a possibility that further treatments such as IVIG may be required as she has not responded as expected.

Keep supporting!

Thank You
Content Disclaimer: The facts and opinions, expressed in this fundraiser page are those of the campaign organiser or users, and not Milaap.
Rs.1,566,835 raised

Goal: Rs.2,000,000

Beneficiary: Srabasti Banerjee info_outline

Supporters (284)

A
Anonymous donated Rs.2,500

Get well soon, Ma'am.

SK
Snigdha donated US $100

Get Well Soon Manini Aunty! 😘

SR
Soma donated Rs.2,500

Live life with that smile!!

BS
Benedikt donated US $30

Get well soon!

AJ
Ankita donated Rs.2,100
A
Anonymous donated Rs.2,500