Initially we thought it was childhood jaundice but then her condition worsenedSandreia was 4 month old when she was diagnosed with jaundice. She was undergoing the usual treatment for the disease. But the itching on her body didn’t seem to stop.
“The doctors asked us to do a liver biopsy and only then we discovered that she is suffering from a genetic disease. The explained to us that her liver can’t secrete bile - it gets accumulated causing a rapid damage of the organ,” - Jay Raj, father.
An old pic of the happy family
It was only last month they got to know that a transplant is Sandreia’s only hopeSince her parents got to know of the disease, Sandreia has been under strict medication. But her condition is far from improving. She has been spending sleepless nights due to the pain and vomits out everything that she eats. She had just started walking but the disease has taken away all her energy.
“Last month when we did a bile test, we found out that her bile level was around 43 (10 being the normal). Doctors told us that now her only hope is a liver transplant.”
They have sold their jewellery and borrowed money - still they are unable to afford the transplantThe medicines have cost Jay Raj around 1.2 lakh which he borrowed from his friends. He works in a private company and tries his best to make the two ends meet. Archana is a homemaker but seeing her husband struggle night and day for their baby, she sold her gold jewellery.
“We have also borrowed from our friends. Both our families are not in a position to help us with money. If we don’t get help, we will never be able to arrange the 18 lakhs and get our baby girl treated.”