Help Rishabh Recover From H Syndrome | Milaap
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Help Rishabh Recover From H Syndrome

My name is Rishabh and I have been ill for the last 6 years.  I am 25 years old and I am  residing in Bengaluru. I  have been diagnosed with a Rare Genetic Inflammatory Disease named H Syndrome. Unfortunately there is very little research on this disease owing to its rarity. There is no approved treatment and hence I have no support from insurance companies. After consultations with experts in this area my doctors concurred on treating me with Tocilizumab which has been used previously in this disease with success. I am being treated at St. John's Hospital and my treatment cost is around 85,000/month. I belong to a middle class family and this treatment which needs to be continued indefinitely is impossible for us to afford.
Please come forward to help me save my self. Any contribution will immensely help me. I need your support. Do contribute and share this campaign link with your friends and family.
Doctor's letter
Doctor's letter
Ask for an update
23rd December 2019
Hi!
My treatment is going on and reports are showing progress. It is a rare of rare diseases and my doctors' efforts are working positively but to continue, it requires a lot of fund.

It all started 6 years back. I had a severe pain in stomach and a lot of vomiting. I was admitted in near by hospital for 2 days and there I got painkillers and some medicines which gave me relief. It was not an end. This deadly pain was repeating itself in 4-6 months and I required to take painkiller to get relief. Its frequency was rapidly increasing and by 2016 it was reoccurring in 15 days. Till now ache last longs for 8-10 hours and a dose of painkiller was able to providing relief. In Feb 2017 it last long for 3 days and painkillers failed. Then I got admitted in AIIMS in July 2017 after analyses of 40 days they diagnosed me for H-syndrome.

We came to Bangalore in Nov 2017. Here in St. John's Hospital, Dr. Benzeeta took my case. She is taking care of my treatment and now my body is showing improvement. I'm on medicine since March 2019 and much better now. Now dose had doubled by Dr. and it will go for a long run.

I and my family will be grateful to you for any help from your side and please refer to your friends and family.

Thanks and Regard,
Rishabh
Hi!
My treatment is going on and reports are showing progress. It is a rare of rare diseases and my doctors' efforts are working positively but to continue, it requires a lot of fund.

It all started 6 years back. I had a severe pain in stomach and a lot of vomiting. I was admitted in near by hospital for 2 days and there I got painkillers and some medicines which gave me relief. It was not an end. This deadly pain was repeating itself in 4-6 months and I required to take painkiller to get relief. Its frequency was rapidly increasing and by 2016 it was reoccurring in 15 days. Till now ache last longs for 8-10 hours and a dose of painkiller was able to providing relief. In Feb 2017 it last long for 3 days and painkillers failed. Then I got admitted in AIIMS in July 2017 after analyses of 40 days they diagnosed me for H-syndrome.

We came to Bangalore in Nov 2017. Here in St. John's Hospital, Dr. Benzeeta took my case. She is taking care of my treatment and now my body is showing improvement. I'm on medicine since March 2019 and much better now. Now dose had doubled by Dr. and it will go for a long run.

I and my family will be grateful to you for any help from your side and please refer to your friends and family.

Thanks and Regard,
Rishabh
Rs.9,900 raised

Goal: Rs.1,000,000

139 Days to go

Beneficiary: Rishabh info_outline

Supporters (1)

RK
Rishabh donated Rs.9,900

Keep going, Rishabh. I hope you receive the best treatment.