I am a private employee in Hyderabad. I have two kids boy and girl, girl is younger and her name is Nivedha 2.5 yrs old. She has been diagnosed with deficiency in enzyme called ASM, and its also called Niemann Pic dicease/storage disorder after all so many medical investigations done. Symptoms are lever and spleen enlargement, Anemia.
 After few specialist and paediatric consultations, Prasad Hospital advised to under go Stem Cell Transplant for symptomatic relief as there is no cure for this.
 It has to be 6 sessions with 3 weeks interval cell transfusion. We are taking treatment as per doctors advice, we are mid of the course now. Each session they charge 75000+ lab test charges + Medicine= 80000+ rupees. Totally it is going to be around 500000 Rupees over all treatment cost.
 Now we are able to see little improvement, hoping for the best.