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Help Needed For The Bone Marrow Transplant Of My 7 Months Old Daughter
Urgent Bone marrow transplant is required for her as her body is not making red blood cells on it's own as she has rare genetic disorder called Diamond Blackfan Anemia
Details for direct bank transfer / UPI payments
Single bead Antigen HLA report
Medical Opinion of Senior Doctor Heamotologist
HD HLA Typing Report with Parents as Donors
Latest Prescription from Doctor performing Bone Marrow Transplant
Diamond Blackfan Anemia Test Report 1st Set
Medical Reports
Diamond Blackfan Anemia Test Report 2nd Set
Details for direct bank transfer / UPI payments
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4th August 2018
My daughter (Mihika Singh) who is our first child was born premature in the 31st week of pregnancy on 28th December 2017 with a birth weight of 1.5 Kg and hemoglobin level of 10.
She was diagnosed with low hemoglobin level few days after birth and was transfused with PRBC on regular basis since then. She has been transfused with PRBC for approximately 6 times till now. Till now she is dependent on steriods to maintain her RBC count after regular transfusion i.e. every 2 months
Dr. Vinay Bohara ( Hemotologist - CHL Hospitals Indore) and Dr. M B Agarwal (Hemotologist - Dadar Mumbai) were doing her treatment for the same.
Both the doctors had advised to undergo Bone Marrow Transplant with Matched Unrelated Donor.
We had saved the cord blood of our baby during her birth with cordlife company. But as the baby's disorder is of genetic level, thereforethe sved cord blood is not useful anymore for her treatment since it is also having same disorder.
Her Bone Marrow Transplant is finally being done in Artemis Hospital Gurgaon under supervision of Dr. Gaurav Kharya, Senior Heamotologist who had prescribed High Definition HLA typing for Bone maroow matching with available donors in national and international registries. But doctors couldn't find full matched donor for her with available donors across various registries. Hence at last the doctors have decided to go with half matched donor with one of the parent which is me. The approximate costs for Bone marrow Transplant will be 40,00,000 INR and the complete procedure and post transfusion medical care duration would be around three months.
Thanks & Regards,
Sachin Singh
09826204699
Bhopal
Contact Details: 09826204699
Bhopal, M.P.
She was diagnosed with low hemoglobin level few days after birth and was transfused with PRBC on regular basis since then. She has been transfused with PRBC for approximately 6 times till now. Till now she is dependent on steriods to maintain her RBC count after regular transfusion i.e. every 2 months
Dr. Vinay Bohara ( Hemotologist - CHL Hospitals Indore) and Dr. M B Agarwal (Hemotologist - Dadar Mumbai) were doing her treatment for the same.
Both the doctors had advised to undergo Bone Marrow Transplant with Matched Unrelated Donor.
We had saved the cord blood of our baby during her birth with cordlife company. But as the baby's disorder is of genetic level, thereforethe sved cord blood is not useful anymore for her treatment since it is also having same disorder.
Her Bone Marrow Transplant is finally being done in Artemis Hospital Gurgaon under supervision of Dr. Gaurav Kharya, Senior Heamotologist who had prescribed High Definition HLA typing for Bone maroow matching with available donors in national and international registries. But doctors couldn't find full matched donor for her with available donors across various registries. Hence at last the doctors have decided to go with half matched donor with one of the parent which is me. The approximate costs for Bone marrow Transplant will be 40,00,000 INR and the complete procedure and post transfusion medical care duration would be around three months.
Thanks & Regards,
Sachin Singh
09826204699
Bhopal
Contact Details: 09826204699
Bhopal, M.P.
My daughter (Mihika Singh) who is our first child was born premature in the 31st week of pregnancy on 28th December 2017 with a birth weight of 1.5 Kg and hemoglobin level of 10.
She was diagnosed with low hemoglobin level few days after birth and was transfused with PRBC on regular basis since then. She has been transfused with PRBC for approximately 6 times till now. Till now she is dependent on steriods to maintain her RBC count after regular transfusion i.e. every 2 months
Dr. Vinay Bohara ( Hemotologist - CHL Hospitals Indore) and Dr. M B Agarwal (Hemotologist - Dadar Mumbai) were doing her treatment for the same.
Both the doctors had advised to undergo Bone Marrow Transplant with Matched Unrelated Donor.
We had saved the cord blood of our baby during her birth with cordlife company. But as the baby's disorder is of genetic level, thereforethe sved cord blood is not useful anymore for her treatment since it is also having same disorder.
Her Bone Marrow Transplant is finally being done in Artemis Hospital Gurgaon under supervision of Dr. Gaurav Kharya, Senior Heamotologist who had prescribed High Definition HLA typing for Bone maroow matching with available donors in national and international registries. But doctors couldn't find full matched donor for her with available donors across various registries. Hence at last the doctors have decided to go with half matched donor with one of the parent which is me. The approximate costs for Bone marrow Transplant will be 40,00,000 INR and the complete procedure and post transfusion medical care duration would be around three months.
Thanks & Regards,
Sachin Singh
09826204699
Bhopal
Contact Details: 09826204699
Bhopal, M.P.
She was diagnosed with low hemoglobin level few days after birth and was transfused with PRBC on regular basis since then. She has been transfused with PRBC for approximately 6 times till now. Till now she is dependent on steriods to maintain her RBC count after regular transfusion i.e. every 2 months
Dr. Vinay Bohara ( Hemotologist - CHL Hospitals Indore) and Dr. M B Agarwal (Hemotologist - Dadar Mumbai) were doing her treatment for the same.
Both the doctors had advised to undergo Bone Marrow Transplant with Matched Unrelated Donor.
We had saved the cord blood of our baby during her birth with cordlife company. But as the baby's disorder is of genetic level, thereforethe sved cord blood is not useful anymore for her treatment since it is also having same disorder.
Her Bone Marrow Transplant is finally being done in Artemis Hospital Gurgaon under supervision of Dr. Gaurav Kharya, Senior Heamotologist who had prescribed High Definition HLA typing for Bone maroow matching with available donors in national and international registries. But doctors couldn't find full matched donor for her with available donors across various registries. Hence at last the doctors have decided to go with half matched donor with one of the parent which is me. The approximate costs for Bone marrow Transplant will be 40,00,000 INR and the complete procedure and post transfusion medical care duration would be around three months.
Thanks & Regards,
Sachin Singh
09826204699
Bhopal
Contact Details: 09826204699
Bhopal, M.P.
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Mihika Singh
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