12-Year-Old With A Damaged Liver Screams In Pain, Needs Urgent Help | Milaap

12-Year-Old With A Damaged Liver Screams In Pain, Needs Urgent Help

“Tanmay has always been a fighter despite the lingering disease that he had for the last four years. Even when we shed tears of despair in front of him, he used to console us saying that he would be fine soon. We had almost started believing the same when he fell sick again. Now the doctors told us that his liver is completely damaged and he needs a transplant in the next ten days. This is his only hope now but I don't know if I can afford it.” - Jagannath, 12-year-old Tanmay's father. 

Tanmay has Wilson’s Disease and his liver is damaged because of this rare medical condition

Fevers, joint pains, stomach ache - all these symptoms had started making Tanmay’s life miserable since 2014. Antibiotics didn’t seem to make him any better as he kept on falling sick. Unsure about what was wrong with their youngest son, Jagannath and Yugalkishori took him to Vellore. It is there they got to know that Tanmany has Wilson’s Disease. It is a rare, inherited disease where copper accumulates in the patient’s liver, brain and other vital organs. Usually, copper is absorbed from our food, and excess is excreted through bile. But in people with Wilson's disease, copper isn't eliminated properly and instead accumulates, possibly to a life-threatening level.
 
“We were scared to death thinking that we might lose our son to this unknown disease. But the doctors assured us. We were told that proper medications and good food can help keep this disease at bay and that Tanmay can have a normal life. We did all of that - even then my son’s liver is damaged. He needs a transplant at the earliest or else he will not make it.” 

Tanmay with his entire family of his parents' wedding anniversary

The little boy’s courage is failing him now as he knows that the transplant is his last resort

Tanmay’s condition has been worsening with every passing day. He has a swollen stomach and he quivers in pain. Sometimes he runs a temperature and also has breathing problems. The doctors in Vellore had advised the parents to take him to Mumbai. The disease is also affecting his kidneys now as he is having a serious problem of not being able to contain his urine.
 
“I can tell by his face that he is scared but he tries to be strong in front of us. Only mentions of his school and his cricket games can bring him a smile on his lips. I try to cheer him up talking about these but in my heart I know that if I am unable to afford the transplant, we shall lose him.”

Buried under mountains of debt, this shopkeeper has no one to turn to for support

Jagannath has a small kirana store in Bilaspur, Chhattisgarh and he is the sole earning member of his family. With his modest income, he is in no condition to afford a transplant for Tanmay. His older son, Tarun (23), is the donor but the costs are posing a major roadblock for the family.
 
I have already borrowed so much from my family members, friends and even moneylenders and spent about 13 lakhs.  I am nowhere near repaying that debt but the transplant would cost me Rs 19 lakhs. How will I ever arrange for so much money?”

How you can help

Jagannath and Yugalkishori were living a happy life with their children. But destiny dealt them a cruel hand when their youngest son, Tanmay was diagnosed with a rare, inherited disease. Now his liver is completely damaged and he needs a transplant. Jagannath is neck deep in debts but you can help him save his son by making a small contribution.

Your kind support can give this boy a second chance at life

THE ABOVE CASE IS SUPPORTED UNDER AFFORDABLE LIVER TRANSPLANT INITIATIVE:

Estimation letter
Estimation letter
Ask for an update
1st July 2019
Dear Supporters,

Thank you for the immense support provided to Tanmay! We have attached a recent photo of his below as an update!

Tanmay is recovering very well, as of now he is still on some medications but he has not developed any post transplant complications. He is back living his life like a normal child and he couldn't be happier about it.



Once again, thank you so much for keeping him in your prayers.

Dear Supporters,

Thank you for the immense support provided to Tanmay! We have attached a recent photo of his below as an update!

Tanmay is recovering very well, as of now he is still on some medications but he has not developed any post transplant complications. He is back living his life like a normal child and he couldn't be happier about it.



Once again, thank you so much for keeping him in your prayers.

31st December 2018
Dear Supporters,

Thank you all for supporting my son.

Tanmay underwent the liver transplant two weeks ago and is recovering in the hospital now. His elder brother was the donor. He has few side effects after the transplant such as fever, constipation, and he was unable to pass urine. Now he is much better and the doctors say that he should be able to get discharged in a day or two.

Thank you all once again for your love.

Regards,
Jagannath Prasad Dewangan
Dear Supporters,

Thank you all for supporting my son.

Tanmay underwent the liver transplant two weeks ago and is recovering in the hospital now. His elder brother was the donor. He has few side effects after the transplant such as fever, constipation, and he was unable to pass urine. Now he is much better and the doctors say that he should be able to get discharged in a day or two.

Thank you all once again for your love.

Regards,
Jagannath Prasad Dewangan
16th December 2018
Dear Supporters,

Thank you for your love and support.

He is currently admitted in the hospital. He was unconscious and now he is conscious and has started having food. His transplant is scheduled in this week. It might change according to his health condition. We shall keep you posted.

Thank you once again.

Regards,
Jagannath Prasad Dewangan (Father)
Dear Supporters,

Thank you for your love and support.

He is currently admitted in the hospital. He was unconscious and now he is conscious and has started having food. His transplant is scheduled in this week. It might change according to his health condition. We shall keep you posted.

Thank you once again.

Regards,
Jagannath Prasad Dewangan (Father)
Rs.664,907 raised

Goal: Rs.1,900,000

Beneficiary: Mast. Tanmay De... info_outline

Supporters (61)

VK
VARNAVI K V donated Rs.500
Ak
Arun donated Rs.500
pd
peter donated Rs.2,500

Get well soon and God Bless

d
darshini-singh donated Rs.879.25
d
darshini-singh donated $97.81
h
help-maktum donated Rs.3,567.68