4-Year-Old Will Rare Dangerous Disease Needs Help To Live | Milaap

4-Year-Old Will Rare Dangerous Disease Needs Help To Live

"He took longer to walk, talk and understand what we were saying. Soon the shape of his head started changing and his forehead started becoming prominent. That was when we found out he has this dangerous disease. The doctors said that only a bone marrow transplant could save him now,” - Aparna, mother

Manchala Madhuram (fondly called Madhu at home) is only 4-year-old. He loves to draw and spend time with his elder brother. The little boy is very close to his mother, Aparna and doesn’t cry even when she wakes him up during his sleep to give him medicine. Somehow, the little one has understood that he can’t say no to his medicine - they are the reason he is able to live a near normal life.



But Madhu is just a kid - the moment a nurse enters the room for his daily injections he screams at the top of his voice. Nothing can console him any more - not even his favourite drawing books. 

Madhu was fighting a rare and dangerous disease a year ago

Madhu had Alpha Mannosidosis – a rare inherited disorder that not only affects physical growth and development but also affects the intellectual development of the child.



Manchala Madhuram (fondly called Madhu at home) is only 4-year-old. He loves to draw and spend time with his elder brother. The little boy is very close to his mother, Aparna and doesn’t cry even when she wakes him up during his sleep to give him medicine. Somehow, the little one has understood that he can’t say no to his medicine - they are the reason he is able to live a near normal life.

His parents spent everything they had to afford Madhu’s transplant, but their fight is not yet over

Srirama and Aparna had started borrowing from their friends and relatives when they knew that a transplant is the only hope for their child. Luckily for them, the fundraiser that they had set up in Milaap also helped to a great extent.

 An old pic of Madhu before the transplant

“Despite a lot of fear, we went ahead with the transplant on 18th December, last year. We thought our worst fears are over but there was a lot more suffering waiting for my son. The doctors had warned us that he will be prone to infections and just two months later, Madhu developed a severe pneumonia. He was in the ventilator support for more than 10 days. He is out of danger now but his condition is very delicate now.”

Without treatment Madhu’s life can be in danger again but his parents don’t have the means

Madhu needs urgent treatment so that his bone marrow transplant becomes a success. Srirama and Aparna have done everything in their power to afford the life-saving transplant. But all their efforts will go in vain if they can’t protect their son in this crucial time of his life. Srirama, who works in a private company and makes around Rs 8000 a month, hasn't been able to go to work regularly. Most of his days go in looking after little Madhu who needs constant attention. He is having a hard time trying to juggle his personal and professional life.



 
“He is so weak now, he sleeps most of the time. Years of treatment and medication has made him tired. He misses being home and wants to go back as soon as possible. But we are worried that he might get sick soon if we can’t continue his treatment. He has an entire life ahead of him, please help us save him," - Srirama, father

Your generous contribution will save this 4-year-old's life


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5th September 2019
Dear Supporters,

We are very grateful for all your love and support.

Here is a quick update about Manchala's health. He is currently undergoing his regular follow ups and checkups every 15 days. The doctors have suggested to continue the follow ups for another 4 months.

Also, we are happy to tell that Manchala's enzyme rate is normal and the bone marrow is working fine.

Thank you once again for all your contributions.

Regards,
Shreeram
(Father)

Dear Supporters,

We are very grateful for all your love and support.

Here is a quick update about Manchala's health. He is currently undergoing his regular follow ups and checkups every 15 days. The doctors have suggested to continue the follow ups for another 4 months.

Also, we are happy to tell that Manchala's enzyme rate is normal and the bone marrow is working fine.

Thank you once again for all your contributions.

Regards,
Shreeram
(Father)

7th June 2019
Dear Supporters,

Thank you all for the love.

Manchala has been coming to the hospital regularly for follow ups and blood investigations.

Thank you all for supporting him.

Regards,
Sneha
Dear Supporters,

Thank you all for the love.

Manchala has been coming to the hospital regularly for follow ups and blood investigations.

Thank you all for supporting him.

Regards,
Sneha
20th December 2018
Dear Supporters,

Here is an update on Manchala. He has undergone BMT on 18/12/2018. He is currently in the BMT room. After the transplant, he is suffering from Loose motion and fever as a side effect. Complications will be there for 10 days and there is nothing to worry is what the doctor has told. Liquid food is given as of now.

Thank you so much for your love and support. Please pray for my kid.

Regards,
Aparna (Mother)
Dear Supporters,

Here is an update on Manchala. He has undergone BMT on 18/12/2018. He is currently in the BMT room. After the transplant, he is suffering from Loose motion and fever as a side effect. Complications will be there for 10 days and there is nothing to worry is what the doctor has told. Liquid food is given as of now.

Thank you so much for your love and support. Please pray for my kid.

Regards,
Aparna (Mother)
Rs.3,280,074 raised

Goal: Rs.3,650,000

Beneficiary: Manchala Madhur... info_outline

Supporters (2186)

p
pappu donated Rs.2,500

Wish him quick recovery. God bless the kid

A
Anonymous donated Rs.300
Radhika
Radhika donated Rs.2,500

Wish you a speedy recovery!

LR
Late donated Rs.1,000

Get well soon

A
Anonymous donated Rs.500
A
Anonymous donated Rs.500