Just when they saw hope for a new beginning, their child got a severe infectionLittle Jesu Mariyan is the youngest son of Vinoth and Kavitha. He did not show any signs of complications until he turned three months. Suddenly, he fell sick and looked very pale and his blood count dropped drastically. A series of tests confirmed that he has Thalassemia, a blood disorder involving lower-than-normal amounts of an oxygen-carrying protein. He was given blood transfusion every month for the past three years. The transfusions were the only thing that kept him from becoming weak. He had bone marrow transplant last month, post which, he got severe fungal infections in his kidneys. These infections have the potential to make his body reject the transplant, which can turn fatal. He needs treatment for the next 2 months to make it.
"The doctors said that the infections can be cured by treatment if his fever is kept under control. He is not able to eat anything, I don't know how his little body can bear so much of pain." - Vinoth, father
Little Jesu cannot go back home and live a normal life without continuing the treatmentLittle Jesu Mariyan has barely seen a world outside the hospital. The only friends he has are at the hospital, and he has never played outside like other children. His parents were protective of him ever since the diagnosis. He kept asking his father why he is always in the hospital, and his parents told him that they will go home soon. But that did not happen, and he's once again confined to the four walls of the hospital. This time little Jesu cannot bear to be in the hospital and he cries uncontrollably to go back home, not knowing that he will lose his life without continuing the treatment.
An old photo of Jesu Mariyan with his father Vinoth
"I promised my son that I'll take him to the park, I'll let him play with other children. I was waiting for my son to see a world outside the hospital. But it feels like he's destined to spend his days in the hospital. He is angry with me, he cries and sometimes even begs me to take him home." - Vinoth, Father.
HIs father, a poor fisherman, cannot afford to continue the treatment to save his childJesu Mariyan's father is a fisherman in Amali Nagar village, Tiruchendur district, Tamil Nadu. He never had an easy life. His father was also a fisherman and he had seen only poverty in his life. Yet, he was determined to raise his children (older daughter Sujani and Jesu) healthy and happy, and try his best to give them a good life. Despite the odds, he managed to get him treated the first time, but now he has nothing.
"We have rented a room for Rs 4000 in Madurai and it has been months since I went to my village. We gave up everything to save our son's life but nothing seems to be enough. I'm borrowing money, even for our food. I was hopeful to take my son back home but he needs treatment for next 2 months. But it costs Rs 3 lakh. I don't know what I can do now, I feel completely lost." - Vinoth.