Little Hemanth has been fighting a rare genetic disorder that has kept him away from normal childhoodLittle Hemanth’s health started deteriorating when he was just 9-months-old. He was diagnosed with inguinal hernia, a condition where a part of the intestine protrudes through a weak spot in the abdominal muscle causing extreme pain even when there's a slight movement. He underwent a surgery for it immediately. His parents, Veerachandra and Padmavathi, thought he got better and can have a normal life. However, they soon realised that Hemanth was not growing as he should. His forehead was unusually protruded and he hadn't started to try talking even when was 2. They took him to various doctors, but no doctor could find a name for his disease. After a few tests, he was diagnosed with mucopolysaccharidosis, a rare genetic disorder that stunts his physical and mental growth. The disease is extremely dangerous as it shortens the lifespan of the child.
Hemanth now needs to undergo a life-saving surgery otherwise he will be bed-ridden for lifeBecause of his genetic disorder, the posterior fossa, that is responsible for balance and coordinated movements, is compressed. Hemanth needs to undergo a surgery to decompress the flattened posterior fossa otherwise he will lose movements in his hands and legs. It's only after this surgery that Hemanth can finally live a life free of illness. Hemanth's condition is growing worse with each passing day and his parents cannot provide him with the surgery due to lack of funds.
Happy Hemanth with his elder brother Sri Ganesha
“I got worried when Hemanth’s hands and legs were growing thinner day after day. He would walk on his toes and some days he couldn’t walk at all. I thought my son’s life is getting better, but I was wrong.” - Padmavathi, mother
Hemanth’s parents have spent 20 lakhs so far to save his lifeHemanth’s father used to work as a Hindi teacher in a private school. But he had no choice but to leave his job to look after Hemanth. They have spent 20 lakhs so far for Hemanth’s treatment and various surgeries. And now after exhausting all the money they borrowed, they are struggling to provide the surgery that can save him from getting completely bedridden.
“I want to save my son anyhow but I have no money left. I have seen my son suffering so much because of this dangerous disease now I don’t want him to be disabled and suffer throughout his life.” - Veerachandra, father
How you can helpLittle Hemanth has 5 days to get a life-saving surgery, without which, he will lose movement in his hands and legs. His parents have spent everything they had on his surgeries so far and don't have the means to afford his treatment any longer. Hemanth needs your help to undergo a surgery that can save him from being paralysed.
Your contribution can save Hemanth