Help 2 year old Avyaan fight Pierre Robin Syndrome | Milaap
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Help 2 year old Avyaan fight Pierre Robin Syndrome

Hi! My name is Sanaz Khozini and I am here to raise funds for my 2yr old son Avyaan Darshan who is suffering from Pierre Robin Syndrome.

What is Pierre Robin Syndrome?
Pierre Robin Syndrome (PRS) is a rare congenital birth defect in which an infant has a smaller than normal lower jaw, a tongue that falls back in the throat, and an upper airway obstruction which causes difficulty in breathing & eating (swallowing).

What is the treatment?
The treatment involves a surgical procedure called Distraction Osteogenesis (DO). An incision is made and the jaw bone is carefully separated to allow a distraction device to be attached to the bone, on both sides of the jaw. The device has two screws that are turned to further separate the bone after surgery. By pulling the ends of the bone apart, new bone will form to fill in the gap and heal. This creates a longer jaw bone and provides more space for the tongue so that it no longer blocks the airway. The device remains in place for 3 months to allow new bone to form. The device is surgically removed at the end of treatment.

Why do I need your help?
So far we have already spent over 20 Lakhs on Avyaan's medical treatment (NICU, tracheotomy, ongoing doctor visits and medication). Loans and money from friends & family have helped us manage these expenses.
As mentioned above, the DO surgery and recovery spans over several months. We won't be able to raise the funds needed for this on our own. We kindly request your help in raising this amount for Avyaan's treatment.

How can you help?
  1. Contribute to this fund. Your small help will go a long way in helping Avyaan recover.
  2. Share this campaign with your friends and family & on social media platforms.
  3. Send your blessings and positive energy to Avyaan. Your prayers will help him recovery quickly.

Thank you for all your help and support.

-Sanaz
E-mail: sanaz.khozeini@gmail.com
Hospital No: MH002316948 (Manipal Hospital, Bangalore)
Avyaan's Hospital File
Avyaan's Hospital File
Avyaan's Hospital Records
Avyaan's Hospital Records
Ask for an update
30th June 2020
Dear Donors,

Avyaan underwent his Mandibular Distraction Surgery yesterday i.e., 29.06.2020. His surgery was successful and is currently recovering at home.

This surgery is the first among the few more required for Avyaan to recover completely. The next surgeries will take place in stages depending upon the progress of the current one.

We wish to inform that we have some funds remaining from this campaign and would like to utilise the same for his next surgery which is scheduled after a couple of months.

We thank you whole heartedly for all your love and support for Avyaan and helping us in this difficult situation.

Please pray for his full recovery.

Thank you. 
Dear Donors,

Avyaan underwent his Mandibular Distraction Surgery yesterday i.e., 29.06.2020. His surgery was successful and is currently recovering at home.

This surgery is the first among the few more required for Avyaan to recover completely. The next surgeries will take place in stages depending upon the progress of the current one.

We wish to inform that we have some funds remaining from this campaign and would like to utilise the same for his next surgery which is scheduled after a couple of months.

We thank you whole heartedly for all your love and support for Avyaan and helping us in this difficult situation.

Please pray for his full recovery.

Thank you. 
11th June 2020
Dear donors,

Avyaan's surgery is scheduled for next week and he needs your kind blessings!

Will update about his progress soon.

Thank you 
Dear donors,

Avyaan's surgery is scheduled for next week and he needs your kind blessings!

Will update about his progress soon.

Thank you 
5th May 2020
5-May-2020:
Due to his small jaw structure, Avyaan has developed a severe tooth infection and decay. The dental surgeons have recommended we get his jaw surgery done as soon as possible and extract the infected teeth as a part of the procedure. As a temporary remedy, Avyaan has been put on antibiotics and pain-killers. The infection has hampered his ability to eat solid food and the medicines have further killed his appetite. He has become weak, thin and dull :-(

We are doing everything we can to put together funds to schedule his first surgery. Because of the lock-down, our business (food industry) has been badly impacted and even 5 Lakhs is hard to raise at this point.
Even a tiny contribution from you would help us immensely. 
5-May-2020:
Due to his small jaw structure, Avyaan has developed a severe tooth infection and decay. The dental surgeons have recommended we get his jaw surgery done as soon as possible and extract the infected teeth as a part of the procedure. As a temporary remedy, Avyaan has been put on antibiotics and pain-killers. The infection has hampered his ability to eat solid food and the medicines have further killed his appetite. He has become weak, thin and dull :-(

We are doing everything we can to put together funds to schedule his first surgery. Because of the lock-down, our business (food industry) has been badly impacted and even 5 Lakhs is hard to raise at this point.
Even a tiny contribution from you would help us immensely. 
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If such claims are found to be not true, Milaap, in its sole discretion, has the right to stop the fundraiser, and refund donations to respective donors.
Rs.597,780 raised

Goal: Rs.500,000

Beneficiary: Avyaan Darshan info_outline

Supporters (153)

A
Archana donated Rs.5,000

Get well, God bless you

SM
Soudeh donated A$100

ساناز جون از صمیم قلب برای پسر کوچولوت آرزوی سلامتی می کنم

MI
Milaap Impact Partner donated Rs.150

Matching payment towards nikhil’s contribution

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nikhil donated Rs.1,000
MI
Milaap Impact Partner donated Rs.222

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A
Anonymous donated $20