Help Jay Save his son - his last chance to survive | Milaap
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Help Jay Save his son - his last chance to survive

My name is Jay and I work for a private company in Bengaluru and my wife is a home maker. 
As you all know earlier this year, both my kids (daughter and son) were hospitalized for their treatments.
With all your blessings and tremendous support my daughter recovered well after kidney transplant and she is doing fine and going to school with lot of enthusiasm.
However, My son was undergoing treatment for acute lymphoblastic leukemia since Oct'2017. He was progressing well until Dec'18 and unfortunately he had relapse and as per doctors we had to abandon the maintenance therapy and was shifted to UK R3 protocol (aggressive chemo) was initiated and after couple of weeks he had severe infection due to chemo and was shifted to ICU for 2 weeks and since then his treatment continued and he completed all of the chemo and was referred for brain and spine radiation.

He completed the radiation therapy as his counts was very low (as expected) doctors waited to initiate maintenance therapy and unfortunately after a week the disease was relapsed  and the doctors at HCG suggested nothing can be done.

However, I was referred to Narayana Majumdar health center (Dr. Sharat Damodar), I spoke to him and he analyzed all the reports and suggested to treat him with Salvage chemotherapy along with BMT, which is the only option to save my son as it is very aggressive cancer which has occurred twice in 8 months.

Presently, my son is admitted in Narayana health for 1 month for chemo therapy and after that he would be in remission for 1 month and then he would undergo to BMT. However, every step in the treatment has its complications and also there shouldn't be any relapse while he is on remission, If so, again he would undergo chemo for 6-8 months and then he would undergo BMT.

Also, this is the last chance for him to recover, as he has taken enough chemo for the past 2 years and body will not sustain with heavy chemo after this.

I need all of your support to help me in this difficult situation.

Estimation for current treatment :
I. Salvage Chemo cost : 3 lakh
II. BMT cost : 39.5 lakh

Total : 42.5 Lakh (assuming there are no complications).

Estimation split up :

Pre-BMT evaluation of Donor : 50,000
Pre-BMT evaluation of patient : 50,000
TCR alpha / CD 45RA Beta depletion kit : 12,50,000
Cost of Haplo transplantation :  20,00,000
Cost of follow-up : 3,00,000
Complications if any :  3,00,000

Total estimation : 42.5 lakh
Cash on Hand : 10.5 lakh

Amount shortfall : 32 lakh (assuming if there are no major complications).

Below are the fund details at hand :

1) Milaap Fund raising :  4 lakh
2) Right to Live NGO :     3 lakh
3) Cash on Hand : 3.5 lakh

Total cash left (1+2+3) = 10.5 lakh

Amount accumulated :

1) Milaap crowd funding  : 32 lakh
2) Right to Live NGO : 7 lakh
3) fund transfer : 15 lakh

Total : 54 lakh

Expenses incurred till date :

I. Daughter's treatment :
 
1) kidney transplant - 12 lakh
2) Supportive medicines for first 6 months - 3 lakh

Total expense incurred : 15 lakh
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II. Son's treatment :

1) Chemo initiation - 3 lakh
2) ICU admission   - 9 lakh
3) Chemo II - 2 lakh
4) Cheno III - 2 lakh
5) Chemo IV - 3 lakh
6) Chemo V - 3 lakh
7) Radiation therapy - 4 lakh
8) Overall Blood periodic Blood test - 2.5 lakh (Jan-Aug)

Total expense incurred : 28.5 lakh
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Amount accumulated : 54 lakh
Daughter's treatment + Son's treatment = 15 + 28.5 = 43.5 lakh

Remaining amount : 10.5 lakh remaining.
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Estimation for Salvage Chemo and BMT
Estimation for Salvage Chemo and BMT
Ask for an update
17th November 2019
Here is the update on the campaign you contributed !
Dear All, Thank you for your tremendous support.

As per doctor's advice, Jay's son has been shifted to BMT (Bone marrow transplant) ward and the prep treatment has been initiated.
In Parallel, starting today, Jay will have to take 2 injections/day for 4 days to increase his stem cells in the body and on the 5th day he would be donating his stem cells. Meanwhile, his son will complete the prep treatment + chemo.

On 5th day (22-Nov) the stem cells will be donated to his son, Post that he would be in close observation until his body accepts the stem cells and start producing on its own. He would be monitored closely for a month as per the plan.

With regards, to this, I request one and all to kindly re-post and share it with your known contacts about the updates and at the same time, I would request once again to share to your known contacts, as shortfall is close to 20 Lakh.

I shall further keep you all posted after a week.

Thank you once again for your tremendous support,




Here is the update on the campaign you contributed !
Dear All, Thank you for your tremendous support.

As per doctor's advice, Jay's son has been shifted to BMT (Bone marrow transplant) ward and the prep treatment has been initiated.
In Parallel, starting today, Jay will have to take 2 injections/day for 4 days to increase his stem cells in the body and on the 5th day he would be donating his stem cells. Meanwhile, his son will complete the prep treatment + chemo.

On 5th day (22-Nov) the stem cells will be donated to his son, Post that he would be in close observation until his body accepts the stem cells and start producing on its own. He would be monitored closely for a month as per the plan.

With regards, to this, I request one and all to kindly re-post and share it with your known contacts about the updates and at the same time, I would request once again to share to your known contacts, as shortfall is close to 20 Lakh.

I shall further keep you all posted after a week.

Thank you once again for your tremendous support,




10th November 2019
Dear All,

Thank you for all of your tremendous support so far.

My son is currently in hospital for the past 1 month and he is recovering well, he was admitted in ICU for 2 days and since then he has recovered well.

As per Doctor's plan, He would undergo bone marrow test to ensure there are no bad cells in spine and in the brain.
Based on the test results, he would undergo Bone Marrow Transplant if there are no bad/cancer cells.

I shall share further updates in a week or two.

I request you to kindly share to your known contacts. I am sure you would have done that already, Request you to kindly re-post the campaign, this will help me a lot...

Thank you again
Jaya
Dear All,

Thank you for all of your tremendous support so far.

My son is currently in hospital for the past 1 month and he is recovering well, he was admitted in ICU for 2 days and since then he has recovered well.

As per Doctor's plan, He would undergo bone marrow test to ensure there are no bad cells in spine and in the brain.
Based on the test results, he would undergo Bone Marrow Transplant if there are no bad/cancer cells.

I shall share further updates in a week or two.

I request you to kindly share to your known contacts. I am sure you would have done that already, Request you to kindly re-post the campaign, this will help me a lot...

Thank you again
Jaya
30th October 2019
Hello All,
Thank you for all your continued support and wishes.

My son had an infection yesterday and having fever, due to low counts and the plan for BMT will have to be pushed until his blood count recovers. The dates given are tentative as of today's input.

Warmly,
Anuradha
Hello All,
Thank you for all your continued support and wishes.

My son had an infection yesterday and having fever, due to low counts and the plan for BMT will have to be pushed until his blood count recovers. The dates given are tentative as of today's input.

Warmly,
Anuradha
Content Disclaimer: The facts and opinions, expressed in this fundraiser page are those of the campaign organiser or users, and not Milaap.
Rs.1,773,887 raised

Goal: Rs.3,000,000

Beneficiary: Jayasimha Kulkarni info_outline

Supporters (705)

A
Anonymous donated Rs.2,500
S
SHARATHSAMPATH donated Rs.5,000
A
Anonymous donated Rs.250
A
Anonymous donated Rs.1,000

Very best wishes and God bless!

RG
RAMYA G U donated Rs.2,500
A
Anonymous donated Rs.2,500

Get well soon