My name is Jay and I work for a private company in Bengaluru and my wife is a home maker.
With all your blessings and tremendous support my daughter recovered well after kidney transplant and she is doing fine and going to school with lot of enthusiasm.
However, My son was undergoing treatment for acute lymphoblastic leukemia since Oct'2017. He was progressing well until Dec'18 and unfortunately he had relapse and as per doctors we had to abandon the maintenance therapy and was shifted to UK R3 protocol (aggressive chemo) was initiated and after couple of weeks he had severe infection due to chemo and was shifted to ICU for 2 weeks and since then his treatment continued and he completed all of the chemo and was referred for brain and spine radiation.
He completed the radiation therapy as his counts was very low (as expected) doctors waited to initiate maintenance therapy and unfortunately after a week the disease was relapsed and the doctors at HCG suggested nothing can be done.
However, I was referred to Narayana Majumdar health center (Dr. Sharat Damodar), I spoke to him and he analyzed all the reports and suggested to treat him with Salvage chemotherapy along with BMT, which is the only option to save my son as it is very aggressive cancer which has occurred twice in 8 months.
Presently, my son is admitted in Narayana health for 1 month for chemo therapy and after that he would be in remission for 1 month and then he would undergo to BMT. However, every step in the treatment has its complications and also there shouldn't be any relapse while he is on remission, If so, again he would undergo chemo for 6-8 months and then he would undergo BMT.
Also, this is the last chance for him to recover, as he has taken enough chemo for the past 2 years and body will not sustain with heavy chemo after this.
I need all of your support to help me in this difficult situation.
Estimation for current treatment :
I. Salvage Chemo cost : 3 lakh
II. BMT cost : 39.5 lakh
Total : 42.5 Lakh (assuming there are no complications).
Estimation split up :
Pre-BMT evaluation of Donor : 50,000
Pre-BMT evaluation of patient : 50,000
TCR alpha / CD 45RA Beta depletion kit : 12,50,000
Cost of Haplo transplantation : 20,00,000
Cost of follow-up : 3,00,000
Complications if any : 3,00,000
Total estimation : 42.5 lakh
Cash on Hand : 10.5 lakh
Amount shortfall : 32 lakh (assuming if there are no major complications).
Below are the fund details at hand :
1) Milaap Fund raising : 4 lakh
2) Right to Live NGO : 3 lakh
3) Cash on Hand : 3.5 lakh
Total cash left (1+2+3) = 10.5 lakh
Amount accumulated :
1) Milaap crowd funding : 32 lakh
2) Right to Live NGO : 7 lakh
3) fund transfer : 15 lakh
Total : 54 lakh
Expenses incurred till date :
I. Daughter's treatment :
1) kidney transplant - 12 lakh
2) Supportive medicines for first 6 months - 3 lakh
Total expense incurred : 15 lakh
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II. Son's treatment :
1) Chemo initiation - 3 lakh
2) ICU admission - 9 lakh
3) Chemo II - 2 lakh
4) Cheno III - 2 lakh
5) Chemo IV - 3 lakh
6) Chemo V - 3 lakh
7) Radiation therapy - 4 lakh
8) Overall Blood periodic Blood test - 2.5 lakh (Jan-Aug)
Total expense incurred : 28.5 lakh
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Amount accumulated : 54 lakh
Daughter's treatment + Son's treatment = 15 + 28.5 = 43.5 lakh
Remaining amount : 10.5 lakh remaining.
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