Help Jay Save his son - his last chance to survive | Milaap
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Help Jay Save his son - his last chance to survive

My name is Jay and I work for a private company in Bengaluru and my wife is a home maker. 
As you all know earlier this year, both my kids (daughter and son) were hospitalized for their treatments.
With all your blessings and tremendous support my daughter recovered well after kidney transplant and she is doing fine and going to school with lot of enthusiasm.
However, My son was undergoing treatment for acute lymphoblastic leukemia since Oct'2017. He was progressing well until Dec'18 and unfortunately he had relapse and as per doctors we had to abandon the maintenance therapy and was shifted to UK R3 protocol (aggressive chemo) was initiated and after couple of weeks he had severe infection due to chemo and was shifted to ICU for 2 weeks and since then his treatment continued and he completed all of the chemo and was referred for brain and spine radiation.

He completed the radiation therapy as his counts was very low (as expected) doctors waited to initiate maintenance therapy and unfortunately after a week the disease was relapsed  and the doctors at HCG suggested nothing can be done.

However, I was referred to Narayana Majumdar health center (Dr. Sharat Damodar), I spoke to him and he analyzed all the reports and suggested to treat him with Salvage chemotherapy along with BMT, which is the only option to save my son as it is very aggressive cancer which has occurred twice in 8 months.

Presently, my son is admitted in Narayana health for 1 month for chemo therapy and after that he would be in remission for 1 month and then he would undergo to BMT. However, every step in the treatment has its complications and also there shouldn't be any relapse while he is on remission, If so, again he would undergo chemo for 6-8 months and then he would undergo BMT.

Also, this is the last chance for him to recover, as he has taken enough chemo for the past 2 years and body will not sustain with heavy chemo after this.

I need all of your support to help me in this difficult situation.

Estimation for current treatment :
I. Salvage Chemo cost : 3 lakh
II. BMT cost : 39.5 lakh

Total : 42.5 Lakh (assuming there are no complications).

Estimation split up :

Pre-BMT evaluation of Donor : 50,000
Pre-BMT evaluation of patient : 50,000
TCR alpha / CD 45RA Beta depletion kit : 12,50,000
Cost of Haplo transplantation :  20,00,000
Cost of follow-up : 3,00,000
Complications if any :  3,00,000

Total estimation : 42.5 lakh
Cash on Hand : 10.5 lakh

Amount shortfall : 32 lakh (assuming if there are no major complications).

Below are the fund details at hand :

1) Milaap Fund raising :  4 lakh
2) Right to Live NGO :     3 lakh
3) Cash on Hand : 3.5 lakh

Total cash left (1+2+3) = 10.5 lakh

Amount accumulated :

1) Milaap crowd funding  : 32 lakh
2) Right to Live NGO : 7 lakh
3) fund transfer : 15 lakh

Total : 54 lakh

Expenses incurred till date :

I. Daughter's treatment :
 
1) kidney transplant - 12 lakh
2) Supportive medicines for first 6 months - 3 lakh

Total expense incurred : 15 lakh
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II. Son's treatment :

1) Chemo initiation - 3 lakh
2) ICU admission   - 9 lakh
3) Chemo II - 2 lakh
4) Cheno III - 2 lakh
5) Chemo IV - 3 lakh
6) Chemo V - 3 lakh
7) Radiation therapy - 4 lakh
8) Overall Blood periodic Blood test - 2.5 lakh (Jan-Aug)

Total expense incurred : 28.5 lakh
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Amount accumulated : 54 lakh
Daughter's treatment + Son's treatment = 15 + 28.5 = 43.5 lakh

Remaining amount : 10.5 lakh remaining.
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Estimation for Salvage Chemo and BMT
Estimation for Salvage Chemo and BMT
Ask for an update
29th January 2020
Dear Supporters,

Thank you for all the love and support that you have shown us.

We regret to inform you that he passed away.

Please pray for his soul to rest in peace

Thank you

Regards,
Anuradha
Dear Supporters,

Thank you for all the love and support that you have shown us.

We regret to inform you that he passed away.

Please pray for his soul to rest in peace

Thank you

Regards,
Anuradha
9th January 2020
Here is the update on the campaign you contributed !
Dear All, Thank you for your tremendous support.

Jay's son was discharged yesterday and back home after a difficult phase of 100 days. During these 100 days, he was in ICU for 15 days and was on ventilator for 8 days. He fought all the odds and is now doing better. I really want to THANK all of you for your tremendous support which was undoubtedly the most toughest and darkest days of my life.

My son need to continue the medication / treatment for the next  3 months and need to visit hospital weekly twice. His blood counts and platelets need to improve and until then he would undergo blood / platelet transfusions.

Presently, he is on immune suppressive drugs and other supportive antibiotics to accept the new stem cells and over a period of time the drugs will be reduced and the new stem cells need to be accepted within that time frame.

I shall keep you all posted again on the progress.

I wish you all a very happy new year !
Here is the update on the campaign you contributed !
Dear All, Thank you for your tremendous support.

Jay's son was discharged yesterday and back home after a difficult phase of 100 days. During these 100 days, he was in ICU for 15 days and was on ventilator for 8 days. He fought all the odds and is now doing better. I really want to THANK all of you for your tremendous support which was undoubtedly the most toughest and darkest days of my life.

My son need to continue the medication / treatment for the next  3 months and need to visit hospital weekly twice. His blood counts and platelets need to improve and until then he would undergo blood / platelet transfusions.

Presently, he is on immune suppressive drugs and other supportive antibiotics to accept the new stem cells and over a period of time the drugs will be reduced and the new stem cells need to be accepted within that time frame.

I shall keep you all posted again on the progress.

I wish you all a very happy new year !
19th December 2019
Here is the update on the campaign you contributed !
Dear All, Thank you for your tremendous support.

My son is doing better and is coping up well for the treatment so far.
I had discussion with doctor today and as per the reports, he has infection (GVHD - Graft Versus Host Disease) and presently he is taking injections for the same and GVHD need to be supressed / need to be kep under control.

He would continue to be in hospital until the infection comes down (approximate 2 more weeks at hospital).

I shall keep you all posted again next week.

Thank you very much for the support !


Here is the update on the campaign you contributed !
Dear All, Thank you for your tremendous support.

My son is doing better and is coping up well for the treatment so far.
I had discussion with doctor today and as per the reports, he has infection (GVHD - Graft Versus Host Disease) and presently he is taking injections for the same and GVHD need to be supressed / need to be kep under control.

He would continue to be in hospital until the infection comes down (approximate 2 more weeks at hospital).

I shall keep you all posted again next week.

Thank you very much for the support !


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If such claims are found to be not true, Milaap, in its sole discretion, has the right to stop the fundraiser, and refund donations to respective donors.
Rs.2,747,962 raised

Goal: Rs.3,000,000

Beneficiary: Jayasimha Kulkarni info_outline

Supporters (760)

AM
Akila donated Rs.1,001
SK
SATHISH donated Rs.1,000
SK
Sreenivas donated $25

Good luck.. All will be ok.

A
Akshay donated Rs.1,000

Get well soon.

JA
Jayaprakash donated $25

Get well soon

PM
PALLAVI MISRA donated Rs.3,000