So, this is about Mr. Shatrughan Rajak. Many of you might have heard his story. He is from Ranchi and his 2 out of 3 kids are not exactly like you and me... they 'might' be suffering from progeria. The doctors of Ranchi have not confirmed the disease yet as it needs to be properly diagnosed first. There are 4-5 institutes in India which has done some research in genetic disorder, AIIMS being one of them.
We saw his story in one of the news article about 7 days back, initially we tried establishing a contact with him, which took another 3 days as none of the groups who covered his story was replying to us. I had a long conversation with him, finally, about 2 days back and he told me that many different groups have approached them, made video regarding the same, but none of them ever came back with help, but he is still hopeful.
I do not know whether the kids are suffering from progeria or not, i do not know whether there is a treatment regarding this or not, what i know is that these kids deserve a proper diagnosis regarding their disorders. I have promised him on behalf of all of us...that we will not turn our back against you. We will make sure you get the treatment done.
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New update (03-05-2016)
I accompanied the family today in aiims, doctor confirmed the disease as cutis laxa and not progeria, dr. Neerja of paediatric department suggested for a complete blood test of both the kids to find out the category of cutis laxa and the test will cost approximately 40,000rs, i will upload the documents of doctor soon, therefore i am increasing the limit to 42,000. Additional 2,000 for medicines, xrays.